Golimumab

farmgirl

Hi all, went to rhuemy yesterday to talk about Humira only to find I'm going to be taking Golimumab, i have never heard of this drug soooooo are any of you fellow suffers taking this, if so does it help?. I already inject MTHX weekly. I have PSA with very swollen fingers. At the moment i feel good but have a 28 bad joint count with 11 swollen. so not to good!!!
Thanks x

stickywicket

I've never taken it but, if you put the name into te Arthritis Care search engine above, quite a lot of stuff comes up. Good luck with it

dreamdaisy

I've not had this one either but I have come across it on here - try using the search facility and I hope some threads pop up. DD

farmgirl

Hi i did that but they are all old posts and was hoping for a more up to date response.

dreamdaisy

Oh that's a shame but hopefully it means that whoever is taking it is doing OK. What reasons did they give you for trying goli instead of humira? DD

trepolpen

took Golimumab for 9 months for RA , it done nothing to help & they doubled the dose & then had a bad reaction & endded up in hospital

some people will will help & you should know pretty quick if its going to , good thing is that it dont have the preservative like enbrel & you dont get the reaction on the injection site ,

theresak

Sorry, I don't know anything about this drug, but I wish you well on it and hope it brings you some improvement.

farmgirl

Hi dreamdaisy, not sure really as i didn't manage to see my consultant, was just told that she had said this one would suit me better!!
I was thinking/hoping the same as nobody had put any thing on about it recently, unless I'm going MAD and can't find it!!

Thanks trepolpen, thats interesting about the injection site as i don't have a reaction to the mthx injection i was worried that i might to the Goli

As5567

I have only recently stopped taking golimumab (Simponi) I had a string of bad luck which is why I think it didn't work for me. My doctor started me off on half the normal dose, then I was put onto the regular dose, then I had to stop it for 2 weeks due to emergency surgery (I was forced to go without it for around 8 weeks) then I was put on double the usual dose.

I wish this drug worked for me but in the end it just wasn't covering me for anywhere near the 4 weekly injection. I would be lucky to get 5-7 days out of it. I do think the messing around with dosage has something to do with it, or at least that is what I have been told by another doctor.

If you would like to know about side effects then I can answer any questions you have. Personally I only had a slight bad head on the day of the injection, feeling tired/worn out and slight dizziness when I first began the medication. Other than that I had no issues at all. Injecting the golimimab is also very simple and is the least painful TNF injection I have taken to date.

For me after my first dose I began to feel the benefits of the medication within hours, but that is just me. I'm not sure why but with every single biologic drug I have taken they seem to work on me within hours and for other people they can take weeks before they feel any benefit. If I remember correctly golimimab is one of the faster acting tnf's in comparison with Humira/Enbrel which typically take anything up to 3 months.

I hope this drug works well for you, let us know how you get on