Hi Everyone, I have been reading posts on this site for months now and it has been a great source of help. I have also found the website a useful tool to find out information. I thought it is about time I joined in and said hello and shared my story to help others know they are not alone and speak to others in the same boat.
I am a 34 year old mum of 2 and up until March this year I was working 50 hours+ a week as a Manager in a Despatch Warehouse. I cannot due to my very long list of ailments and conditions do this any more. Some days I can hardly walk a step. I was diagnosed in Sept 2104 with Ehlers-Danlos syndrome, which is a genetic connective tissue disorder, I have had symptoms all my life. It means basically I lack collagen in my ligaments and other body parts so my joints move around too much. This has caused the early on set of osteoarthritis. I have arthritis in my feet, in my big toe, a terrible bunion, that i should be having surgery on at some point.(straightening and fusion and shortening of bones) I have two bones in my feet that are too long. I also have flat feet. I have arthritis in my knees, my back, my hands and not confirmed but possibly in my jaw. I have degenerative disc disease/trapped nerves/degenerative facet joints,bulging discs...grade 3/4 cartilage loss in my knee, patella alta (my knee caps sit too high) this means they move around too much. I also have a loose body of cartilage floating around my knee and loose tendons. The ehlers-danlos causes you to be super flexible yet be stiff and achey. Every joint and muscle, tendon and ligament in your body hurts .But the OA crunching/grinding is the pain I feel more. It also causes migraines/anxiety...thin skin...you can see all the veins through my skin. The worse pain I have ever felt is last week my left leg doubled in size and was excruciating, I went to hospital and discovered I have a deep vein thrombosis well two blood clots actually..so on top of all all the pain meds for OA I am now on blood thinners! Although I can no longer take certain other tablets! I am remaining positive! I am trying to keep active, eat healthy and try alternative options..sorry for the long post..just wanted you to get to know me..ive have got to know quite a lot of you so far...thank you becks xx 8)