Hi, Welcome!

The community is a safe space for people living with and connected to arthritis to ask questions and share experiences. Get started by registering here and posting your first comment or question!

Sign In with a Versus Arthritis account

Help us improve our website, chatbot and online community
We’d love your help to improve our digital services. It’s important to us that our website, chatbot and online community continue to support and provide information people with arthritis in the right way. We’re excited to be doing research to understand more about what’s working for you and what’s not so we can continue to improve what we’re doing.
You don’t need to be familiar with our digital services or a digital native to take part. The research will take one hour and will be run by a research consultancy SnapOut. Simply fill in the survey below to get involved. Together, we can continue to do more for people living with arthritis.

Fill in this survey to take part

Successful PIP claim

NNIFNNIF Posts: 6
Hello all! I've been a member here for quite some time but I don't recall ever posting. I just wanted to share my experience of claiming PIP and the outcome.

A bit of background first. I have acute osteoarthritis in my right ankle as a result of an accident 18.5 years ago. I retain less than 10 mobility of my ankle and have endured constant pain since 1996. I applied for DLA in 2002 and was refused but didn't appeal the decision.

After just getting on and managing for a number of years, I decided to apply for PIP at the end of February this year. This was due to a number of reasons:

I live in London and was beginning to struggle financially due to the additional costs related to my disability. (Taxis, take out due to having no energy or being in too much pain at the end of the day to cook)

The cost of living in London is high and in the brief period that I was out of work last year, I amassed debt due to not having enough money to cover rent and living expenses.

I was sent a letter for assessment at the end of May inviting me to visit Milton Keynes at midday on a week day. I called and told them that there was no way in which I would be able to make a midday appointment outside of London. They were fine about it and offered a rearranged date within 2 miles of where I live and my choice of either day of the weekend.

My assessment took place on Sunday 28th June. The woman who held the interview was nice enough and clearly explained what would happen before the assessment.

The components were: A timeline of my accident to present (including hospitals that I had been treated at, dates of operations, departments that I had been under the care of - Orthotics, physiotherapy etc and medication)

The next part looked at the impact of my daily living. I had kept a record of what special considerations I have to make in order to live. For example, planning my day so that I minimise energy expenditure and pain so sometimes that costs me in paying for taxis or take out. Also, I live in rented accommodation so this impacts upon my ease with stairs, and using the bathroom (which is upstairs... No rushing for me!)

The final part was regarding mobility. Where I live isn't that close to transport links. My closest bus stop is 0.3 miles away. The tube/train is 0.4 miles away. I gave the assessor the best and worst time it has taken me to walk to the bus stop (27mins and 73mins) I also gave on average how many "good" days I have per month (not many... Perhaps 3-4)

I summed up by talking about having to constantly make choices. I have to work as I can't afford not to. I'm a youth worker so availability of jobs isn't that high and I had to take a job where I could (the other side of London). Most days I take the bus the whole way as I'm not guaranteed a seat travelling by train/tube (I just can't stand for an hour... Certainly not if I'm expected to work a full day as well). I can take cabs for part of the journey but the minimum fare is £5 (even for 0.3 miles)... Also financially, I can't do this for the whole month. I leave my house at 6.30am and don't get back until 8pm or later and I'm not in any kind of shape to cook. (Even microwaved food is difficult... My bas lance is crap and carrying hot food whilst limping with a walking aid isn't great).

The decision came through really quickly. On July 7th I was awarded standard rate for both care and mobility (8 points for care and 10 points for mobility). It has already made a difference as my local authority have said due to the 10 points for mobility I am likely to qualify for a blue badge, disabled persons freedom pass and taxi card.

I hope this is useful for others who are still going through the claim process.

Comments

  • stickywicketstickywicket Posts: 25,968 ✭✭
    edited 30. Nov -1, 00:00
    Hello and welcome. I'm glad you had a good outcome to your application. I think it might have helped that you were so thorough in your own preparations.

    You'll see, from others' posts that interviews and interviewers seem to vary enormously but, if others read your thoughtful and kind post and are encouraged by how well and smoothly things can go with a little preparation and forethought, it will have been very valuable. Thank you and congratulations on getting it. I hope the BB application goes as smoothly :D
    “There is always a well-known solution to every human problem - neat, plausible, and wrong.” H.L. Mencken
  • JenJen Posts: 155
    edited 30. Nov -1, 00:00
    Thanks for taking the time to share your experience NNIF.

    Congratulations on a successful PIP claim and hopefully this will make things so much easier for you.

    Bes wishes to you.
    flower2520paars.gif~c200
  • NNIFNNIF Posts: 6
    edited 30. Nov -1, 00:00
    Thank you very much. It is already making a difference on my energy expenditure as I have been able to afford taking taxis between my home and the nearest tube station. I received my blue badge this morning; this too will make an incredible difference to managing with commuting.

    I realised that in comparison to other stories that I have read that I am very lucky due to the speed and outcome of my claims. I can only wish the same for others going through this process.
  • stickywicketstickywicket Posts: 25,968 ✭✭
    edited 30. Nov -1, 00:00
    The PIP is doing exactly what it's supposed to do for you and I'm very pleased about that. We need to hear the success stories as well as the bad news.
    “There is always a well-known solution to every human problem - neat, plausible, and wrong.” H.L. Mencken
  • stickywicketstickywicket Posts: 25,968 ✭✭
    edited 30. Nov -1, 00:00
    Bumped up to help new PIP claimants.
    “There is always a well-known solution to every human problem - neat, plausible, and wrong.” H.L. Mencken
  • emmaadamsemmaadams Posts: 140
    edited 30. Nov -1, 00:00
    thank you for your detailed post .. i have my PIP assessment on Thursday next week .. i applied for it at the end of August and have only just been sent my date for assessment.. a lot of the information that was on the forms has changed . meds increased,new doctors,specialists ect. i have Written down some notes about all this to take with me ..im very nervous about going ,there are a lot of Bad stories about hoe they try and trick you and stuff and how some assessors can be ignorant and make the decision just by your appearance ...

    i will keep you updated on the outcome and how it went :)
  • SloshSlosh Posts: 3,194
    edited 30. Nov -1, 00:00
    My PIP assessor was fine, I have no complaints about him and didn't feel he was trying to catch me out. My daughter has also had one for ME, she was unsuccessful as at that stage the diagnosis hadn't been confirmed by a specialist, but she also said her assessor, at a different centre to me was fine. We both had ATOS assessors.

    Good luck
    He did not say you will not be storm tossed, you will not be sore distressed, you will not be work weary. He said you will not be overcome.
    Julian of Norwich
Sign In or Register to comment.