My name is Jules, (mid to late 40's)
I have been here once before some time ago. Back then I think I posted about having shoulder impingement and arthritis, you were all great
I did speak with my doc back then who said for me to contact OT myself via their net page. Believe it or not, I posted then a message November last
year, by the time they contacted me back in March this I actually had no idea why they were calling. It had been so long waiting, id forgotten lol. Anyway, that app I postponed as I was feeling rough (fatigue), I thought I was just feeling run down, I had no idea what so ever I had fatigue.
Then i made an appointment, she cancelled, her father was taken I'll and later passed away, a while later she returned to work, rang me to reschedule then cancelled on me again as she'd booked me into see her during her booked holidays.. by the time she returned i was mid moving house, so I have yet to see her.
My doc is "finally" making an appointment for me to see the rheumatology team/person.
Back in 1998 my fingers (3 on each finger, ) were diagnosed as arthritis, was never told what type though, but it was just fingers, not thumbs..
My arthritis back then lasted about a year or so, I
don't really remember, that may have just been how long I felt id had it.. I remember not being able to cut my own food.
Reading so many threads here I consider myself extremely lucky as into the turn of the century apart from the occasional flare up in my fingers, it was never really bad.
Well.... it seems id been blessed with minor issues in my hands for long enough so it crept up and dang did it come back with a vengeance !!
January 2011 I damaged my left shoulder, tore the fluid sac between the ball and socket until the bones were grinding against themselves (won't go into detail about the impingement just that --->>>) by the time I went in for surgery I was in agony and taking 100mg oxycontin, 2mg diazapam when needed, 10ml oramorph every 3-4 hours, diclofenac, move at cream, brufen cream, bridegroom gel, bio freeze spray and gel (omg that disgusting green gunk is like something id expect to be zapped in Ghostbusters!!)
During 4 hurt surgery arthritis in my left shoulder waas found, but as the surgeon went in to fix my shoulder impingement, not the arthritis, the details, name etc didn't really go into depth..
While having rays on both shoulders (for comparison) arthritis was spotted in both shoulders, but again as the rays were for a different issue, no-one would expand even a little on the arthritis for me.
So now, I have it confirmed its all 8 fingers and both shoulders
oh and an "Its probably very likely" for arthritis in both thumbs.
When i asked my doc about the pains in the back of my neck I was pushing to get some form, any form of diagnosis out of anyone...
I said to my doc ...... " I need to know if the pain in the base of my neck is due from it coming up from shoulder surgery i'm still waiting to get fixed, or is itnpossiblenit could either be cervical arthritis or AS "
He replied " Its not from the damaged shoulders, there is a good chance though that it is both of the typesmof arthritis at the same time that you mention, you should ask rheumatoligy that when you see them"
From me, its, pain-wise, hardly there most flare ups in my feet, both knees are getting progressively worse making it harder to walk during flare ups, haven't felt it in my hips,
I know I have tennis elbow in both arms, hands, shoulders and neck i've already covered.
This last month i've had the worst flare up ever, as I said, I have been extremely lucky in must getting mild pains in hand flare ups which i,'ve generally just gotten brufen from the chemist and used voltarol as a rub in rather that seeing the doc for movelat, but wow am I suffering now. Every major joint is agony, and when the brufen does calm those a little, some of the smaller joints start hurting.
Few nights ago my husband was helping me put on my cardy and I literally had tears streaming down my face, I was screaming "put my arm down" !!!!
It was excruciating to say the least!!!
As I said earlier, I have been reading the forums here for a while now, so pain-wise, i'm pretty sure many of you have experienced something similar.
This flare up I did get first hand experience of having fatigue though, how it affects me mentally, physically and emotionally, I think it took my husband by surprise too when he realized I wasn't pretending to be tired just to get out of doing something.
Oh wow, sorry for those reading, i've just scrolled up and seen how much i've typed - i'll so suffer for that one when the diclofenac wears off
So, that's me, my aches, pains and killer pains.. thanks for reading, if you made it all the way to the end ---- just glad no one has arthritis of the eye balls triggered from excessive reading
Nice too meet you all