My extremely active and athletic 10 year old daughter was recently diagnosed with polyarticular JIA. This is her first year she has to deal with this illness in school. The first few days were difficult, writing was very painful. I was able to discuss with her school early on and they have made accommodations for her, which has been great. Her doctor put her on prednisone and that has greatly improved her symptoms, but it is a temporary solution and she has been on methotrexate for a 2-3 months.
Of course, her pain is of concern, but we (as parents) also have concerns about their emotional well being. I've worried about what kids might say or do. She had chosen not to share her diagnosis. Today she called me crying that a boy had told her to get away from him because she was contagious. It's a difficult situation, dealing with a recent chronic illness, the pain, the inability to do things you were able to do, the sadness, but to have to deal with this added worry is so hard. I'm very sad for her and don't know what my next course of action should be. Should i ask the administration to explain to her class what's going on, do i go in and explain (I'm all too aware of this disease because i have RA), do we keep quiet?
We don't know anyone in our situation and any advice or personal experiences would be very helpful.