puzzling the doctors

emmaadams

hi guys ive been back to my GP today as i have been having really bad and uncontrollable shaking/spasms which has become very painful , in my legs along with all my other pain ect they get so bad that i have to be physically held down by the hubby .. i have had several falls this week due to not being able to stand up due to the shaking , and to my legs just giving out on me ..

he seems to think it might be my medication so he is reducing my gabapentin and weaning me off it as it is not working , the doctors have not idea where my pain is coming from or what is causing it . i had to go through everything ive been told and who ive seen to try and figure out what's going on ... they did however finally confirm i have OA in both knees,hips,and lower back ... but im still puzzling him. hes said some of my symptoms are flagging up as MS so hes sending me to a neurologist .he did some more tests on me and wasn't happy with my sensation responses and my lower back examination ..i have to go for more bloods tomorrow also

needless to say im more confused now than i was before .. we was in the GP for almost an hour trying to sort stuff out , he asked me what diagnosis my physio gave me .. i told him he hasn't given me one only told me that ,my muscles are week and gave me exercises to do on my lower back ...

so i have absolutly no idea whats going on .....and no doubt i will be left in limbo for weeks .. i do have to go back and see him in 4 weeks once i have weaned myself off the Gabapentin to hopefully try something else for the pain .. i think these next 4 weeks are gonna be very painful


sending warm hugs to you all and thank you for listening xxx


Emma xx

Slosh

So sorry to hear that, it must be very frightening on top of all the pain. I had to have a brain MRI last year as there were concerns I might have MS but luckily they came back clear, it was a very stressful time though so I can feel for you and hope you don't have to wait too long for the tests/results.

I'm afraid I can't offer any advice or thoughts on the drugs front although I can understand how you are feeling about having to come off one of them. All I can say is that it sounds as though your GP is listening and trying to find a solution for you. The only thing I can think of is have you been referred to a consultant for OA? Mine is brilliant and thinks outside his speciality which is good and will refer me to other specialists when needed as well as sending me for different tests. Apparently I am an "interesting case "!

Good luck and thinking of you.

emmaadams

hi Slosh i have no idea if hes referred me to a specialist for the OA . he did as when i last say orthopaedics which was in july after my operation and it was only a post op appointment which he then discharged me from their care back to my GP as i was having numbness and pain in my back and in both legs.. i then got an appointment to see a specialist but that was with my now current Physiotherapist ..

i have woken up this morning extremely tired, sore and in a lot of pain ... i had several episodes early morning which has kept me awake .. i am fed bup of being left in the dark about whats going on ect . i know they dont really know whats causing it yet its just very frustrating. i think that today is going to be better than yesterday or last month and its not its just getting worse each day and each month

i am hoping that it is not MS as i dont know what i will do with that kind of diagnosis to be fair .. its bad enough having the OA let alone something else . i presume that when i do go see a neurologist they will request scans ect ... my GP did request i have a scan on my legs 2 weeks ago but he has now since over ruled that decision and is requesting i go to a specialist ...

i am trying to keep an open and positive mind but its really hard especially when i suffer with aniety it is hard not to over think things which then will in turn make it worse

Thanks

Emma xx

barbara12

Hello Emma..its scary when you dont know what is going on..I do hope they can get to the bottom of things..my legs go wobbly on me due to OA in my spine..you do seem to have a good GP that is willing to listen and that is everything..

emmaadams

thanks Barbara12. he is very good at listening to me and i finally have good communication going with him .. it took me a while but i got there lol .... i have been back for my bloody today the nurse said they are checking foe everything..she said a lot of names for tests but cant really remember them all i do remember the crp one and one to do with rheumatism and genetics or something .. they have loads of fancy names lol she took quite a bit . i should hear back soon . it was even on my notes about his emergency referral to neurology as the nurse was making small talk and asked how ive been ect and that she used to work in neurology .

im still wobbly on my legs i had a episode again whilst in the waiting room at the surgery ...

just a waiting game now xx

thank you both for you messages

Emma xx