Help and Explain Terms

bridlass
bridlass Member Posts: 35
edited 9. Dec 2015, 04:59 in Chat to our Helpline Team archive
Help and explain.

Yesterday my daughter saw a rheumatologist. She was diagnosed with Fibromyalgia (I can understand the internet stuff on this) and SPONDYLOARTHROAPTHY ENTHESITIS. The internet eplainations are rather "medically" worded. Can anyone explain it in layman's terms please.

Thanks
Bridlass

Comments

  • helpline_team
    helpline_team Posts: 3,863
    edited 30. Nov -0001, 00:00
    bridlass wrote:
    Help and explain.

    Yesterday my daughter saw a rheumatologist. She was diagnosed with Fibromyalgia (I can understand the internet stuff on this) and SPONDYLOARTHROAPTHY ENTHESITIS. The internet eplainations are rather "medically" worded. Can anyone explain it in layman's terms please.

    Thanks
    Bridlass

    Dear Bridlass

    Thank you for your posting on the forum. We are currently unable to respond in full today to your query and will respond more fully on Monday 7th December.

    Best Wishes
    Dawn
  • Slosh
    Slosh Member Posts: 3,194
    edited 30. Nov -0001, 00:00
    I would suggest making an appointment with your GP
    He did not say you will not be storm tossed, you will not be sore distressed, you will not be work weary. He said you will not be overcome.
    Julian of Norwich
  • helpline_team
    helpline_team Posts: 3,863
    edited 30. Nov -0001, 00:00
    Dear Bridlass
    Thank you for your posting and thank you for your patience in waiting for our response. We do not have any information on this condition directly. We do have information on the spondyloarthropathies, (often called spondyloarthritis). Spondyloarthropathy is a term that covers a group of arthritis conditions. We do not have any information about the specific condition you have asked about but the following two articles may provide you with some information. http://www.arthritisresearchuk.org/arthritis-information/arthritis-today-magazine/140-spring-2008/seronegative-spondyloarthopathy.aspx
    http://www.arthritisresearchuk.org/health-professionals-and-students/reports/hands-on/hands-on-spring-2010.aspx
    I can appreciate that it is difficult trying to find information about a condition that you have been diagnosed with. It is best to speak to the rheumatologist or rheumatologist specialist nurse about an explanation of the condition. Often it is a good idea to write down the questions you want to ask before you go for your appointment or call the specialist nurse. This means you can think in advance what you would like to know. You can also always call us here on the helpline to talk things through with us so that we can give you some support over the phone. You can call us on the helpline on 0808 800 4050 (weekdays 10am – 4pm). I hope this is helpful.

    Best wishes
    Dawn
  • daffy2
    daffy2 Member Posts: 1,636
    edited 30. Nov -0001, 00:00
    Hello bridlass
    I don't know if this might help.
    Enthesitis-related JIA | Arthritis Research UK
    http://www.arthritisresearchuk.org/arthritis-information/.../enthesitis-jia.aspx
    Enthesitis-related JIA is a type of juvenile idiopathic arthritis (JIA). This form of JIA affects the places where tendons attach to the bone (these places are called entheses), causing inflammation. It often affects the joints of the leg and spine.
  • helpline_team
    helpline_team Posts: 3,863
    edited 30. Nov -0001, 00:00
    Hi bridlass,

    You didn't mention your daughter's age - so I think my colleague may have assumed she may not be a child.

    But if you'd like relevant printed information or would like a chat to clarify things do feel free to ring us on our free phone - 0808 800 4050 10am to 4pm weekdays.

    I hope we can help further.

    Kind regards

    Guy

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