I hope you're all managing ok. It's a manic time of year.
I'm having a bit of a rough time at the moment. And having a bit of a dilemma over whether to take a course of prednisolone or not..
I'll try and summarise.
I've been flaring for months due to med overhaul, and since September have come down with a number of things- a skin infection that required six weeks of antibiotics, followed by two weeks of nausea and sickness due to a drug interaction wrecking my stomach. I just about got over that for a couple of days and have now come down with flu.
I haven't felt this ill in years, I think I'm quite run down.
Because I've been ill for a long time, my infliximab infusion hasn't been given for over nine weeks now. My inflammation is now really bad (eyes and joints).
My med team have suggested a course of prednisolone, since I'm off all other meds.
The dilemma is I know from previous experience that prednisolone really impacts my mood. It can make me feel quite low and stressed.
I'm already very low at the moment being quite run down, teary alot, im having major stress at work, and then last night I found out someone I'm very close to (my age, in his 30's) has been diagnosed with cancer.
I feel like I'm really pushing myself to try and keep myself together, and I'm worried that steroids would make things much tougher if I add them in at this time.
But equally I have my Consultant who is keen for me to start them because my condition is so bad, theyre concerned, and with having flu I can't go back on any immune suppressants until I'm much better.
I know I have to make the decision myself ultimately, its hard when you feel quite alone and overwhelmed.
Apologies for the very long message,
I'm having personal counselling as I'm aware I'm feeling quite alone, and it's helping me cope, but I'm still having the dilemma over the steroids.
(I'm taking steroid eye drops, but its not controlling things at all)
Do any of you find you can tolerate lower doses of steroids mood wise? They've suggested I take 30mg a day :-/,