My life has been turned upside down by this disease
2 x 40mg humira injections fortnightly
4 x 200mg pregablin daily
I'm 29 and it was diagnosed 12 years ago, I try my best to not let the pain ruin my life but sometimes like today it gets me and feel really down,
The last 12 months has been a rollercoaster lost my job of 7 years as an IT Manager because of the amount of time I had off and have given up finding a new one.
Relationships with women don't last when they see me on bad days they can't put up with me!
Friends don't seem to fully understand, and I feel like I've hit rock bottom.
I've had stainsby procedure on my left toes, I've had my left ankle fused and both thumbs fused, and also been told I have a slipped disc in my back but they won't operate until I've lost 5 stone. That's the difficult one when I can hardly do any exercise!!
I would like if possible to know if there are any support groups in the Manchester area where I can meet people of similar age with similar problems that understand what I'm going through.
I'm currently living on my own in my own house but finding it really challenging.
I get enhanced pip for living and motability after being moved over from DLA which was a horrible experience, and even though having benefits to help is good, I would give them up at the drop of a hat if someone said I could make you normal again!!
Sorry if I've been waffling on but just need to get this off my mind,