Hey everyone

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BN21
BN21 Member Posts: 2
edited 22. Mar 2016, 03:54 in Say Hello Archive
Hi everyone,

I was diagnosed with JIA mid-teens. I'm still suffering with it today and methotrexate/leflunomide hasn't been entirely effective.

I thought i'd join up just to share experiences with other people as I don't know anyone my age (20s) with it. Also I've just had my knee drained for the 2nd time in 2 weeks so I'm bound to my laptop.

I looked forward to getting to know you all!

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  • [Deleted User]
    [Deleted User] Posts: 3,635
    edited 30. Nov -1, 00:00
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    Hi
    and welcome to the forum it is lovely to have you here. We have a forum for young people that you might like to visit but of course you are welcome to post everywhere. Our Living with arthritis forum is the most popular. There is a thread in the young people's section you might want to post in as there are some people there with JIA.
    http://arthritiscareforum.org.uk/viewtopic.php?f=10&t=44180&p=609996#p609996
    We do also have courses for young people so check out our website. The next ones seem to be in Scotland but we do run them in England and Wales too
    https://www.arthritiscare.org.uk/help-and-support/events/877-joint-potential-selfimage-weekend
    Best wishes to you
    Moderator Sharon
  • stickywicket
    stickywicket Member Posts: 27,719
    edited 30. Nov -1, 00:00
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    Hi there. Sorry we're a bit slow off the mark. (Must be the arthritis :wink: 0) I've had it since I was 15 but I'm no longer young. We do have some young people on here though and, if you post on the Living With Arthritis forum, they're more likely to see it and reply.

    If your meds aren't working do get in touch with your rheumatology helpline but, of course, the effectivemess or otherwise of the meds doesn't necessarily bear much relationship to the pain we feel.

    It's years since I had a knee drained. How's it going?
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    I apologise for not replying before now but I've been affected by a rather nasty stomach bug. The only procedure that could make me run is having my knees drained: I've had it done many times and all have been deeply unpleasant experiences which were never that successful. I found meth and lef of very little help but my current triple therapy is doing something to control my psoriatic arthritis, a little something but a something nonetheless.

    It can be easy to have hopes which are too high in regard to the effectiveness of the meds, all of us know people who fall ill, go to the doctors and maybe take some medication and return to full health: it's not like that for us, is it? When did you have your meds reviewed last? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben