I understand that this might sound like Im moaning, as on the internet it's hard to convey tone. Nevertheless I'm actually just trying to be honest about my situation.
I've been on this journey following a car accident since the age of 27. I've tried a number of different DMARDs, Biological therapies and NSAIDS yet every time my body finds a way around the drug. My biological therapy nurse has confirmed that's what my body is doing and has said that my RA is the most aggressive she has seen in 20 years (if you're going to do it, you might as well do it right, seems to be my body's mantra
I've tried the usuals, Methotrexate, Cimzia, Abatacept and now Toc yet nothing helps long term. I've developed:
- connective tissue disease
and others along the way
I just wondered if anyone else has had a similar path really. Some days it just feels imposssible, though I try and get on as best I can. My pain ranges from severe to extremely severe, and although my aim has always been to return to work, with every drug I trial, the hope fades a bit more.
I also seem to see an awful lot of publications which seems to target those of us who have moderate/low disease activity, yet I'm having difficulty finding any resources to help with a situation such as mine. Does anyone have any advice for resources at all?