My name is Susan and I've been diagnosed with some sort of inflammatory arthritis for 8 years. I have negative factor in my blood. I've been on every sort of drug and either they don't work or I am intolerant of them.
My latest drug is tocilizumab and I was on it IV/monthly for a good while. It worked fairly well but I still had pain. I was switched to sub cut/weekly injections and over the last 3 months I've had my worst flare up ever. I'm back on steroids, had a general steroid injection plus one into my finger and one into my shoulder. The joint specific injections helped for a while.
When I saw my consultant a couple of weeks ago he said that he'd had a few people relapse when they moved from IV to sub cut tocilizumab. I wonder if anyone else has heard or experienced this.
I am fairly desperate as there's no much else he can offer me and meanwhile I'm unable to work and am in pain in about 5 joints including right across my back.