Hi my daughter came off the metoject pen in February. She had been having metho for a year. For her JIA. Now we are in August just after her 5th birthday and she has started having stiff neck pain. Doctors say it torticollis. Which occurs in young children. But it has been going on now for nearly 4 weeks on and off. Out of the blue. She had her bloods checked and they came back clear of any inflammation but not so sure. As it took MRI scan to show she had inflammation for her to be diagnosed JIA. They took blood test. Did a ultra sound scan. And nothing showed up until the MRI. So you can understand why I'm still worried x thank you for read my post x
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It's a recurring theme on here that we are so attuned to arthritis that we attribute every ache and pain to it and often the real source is something else, something largely innocuous which lots of others, who don't have arthritis, also get. That can come as a relief but doesn't stop us worrying entirely.
I think your docs have been thorough and all you can do is wait and see and try not to make your little one any more aware of it than she must be. (If she thinks you are worrying so will she and that will concentrate her mind on it.) Try to give it a few weeks. That won't make any appreciable difference even if - worst case scenario - it is the arthritis back again. I do hope it's not but I don't envy you your task.
I agree with Sticky, sometimes we blame everything on arthritis when it isn't at fault. It's unfair enough that we have this in the first place but can then also have the more common-and-garden afflictions too. I am sure that your daughter's docs are aware of her history and will monitor her carefully. I am not a parent but I can understand your concerns and fears: remember we're always here to listen. I wish you both well. DD
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I know you had such high hopes of it having gone away.
Remember, your hopes were high because the medication was working. It can work again. Things will get better. Not as better as you'd hoped but, with luck, she'll soon be her old self again, albeit with the help of the medication.
Have you seen this online Pain Management Course for children and their parents? http://arthritiscareforum.org.uk/viewtopic.php?f=43&t=46870
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Stay strong, Pardeep. Your little girl needs you to be strong.
It is immensely hard to watch our children in pain but children are much more resilient than adults. We see only what might be lost. They just see an interesting world unfolding. Yes, if the arthritis is permanent and in need of constant medication, there will be opportunities lost but there will still be very many opportunities available.
If I remember rightly, the reason why they thought it might have gone away was because the medication was controlling it so well. That can happen again and I very much hope it does.
Have you considered ringing our Helpline people for a talk about it?
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