Taken off all the meds after only 3 weeks

Paleogirl
Paleogirl Member Posts: 75
edited 11. Oct 2016, 05:55 in Living with Arthritis archive
So I was diagnosed three weeks ago. I was given a steroid shot which had the reverse effect and flared my condition quite severely. Then I had a reaction to the first dose of methotrexate and now they've had to take me off the hydroxychloroquinine because I've reacted to that too.

Latest bloods show I've now got an infection going on somewhere too probably as a result of the medication.

The consultant will be taking another look on Friday but they are apparently slightly stumped as they know my condition is quite aggressive but so far the treatment isn't going to plan. Has anyone else had this. I'm worried it will run rampant because they can't treat me :(

Comments

  • Megrose2
    Megrose2 Member Posts: 331
    edited 30. Nov -1, 00:00
    I'm afraid I can't help with your dilemma, but just wanted to offer my support. I hope they can sort things out for you on Friday. Take care.

    Meg
  • frogmorton
    frogmorton Member Posts: 30,087
    edited 30. Nov -1, 00:00
    Oh Dear Paleogirl!

    I am sorry that things haven't gone to plan yet. I can understand your fear that the disease might 'run rampant'.

    Just remember 'they' are monitoring you and will be looking after you. I hope the infection settles down quickly for you and you are able to start some treatment for the RA.

    Sending some ((()))

    Toni xxx
  • dibdab
    dibdab Member Posts: 1,498
    edited 30. Nov -1, 00:00
    Just sending some sympathy and understanding. Please don't despair, there are lots of treatments out there and it always takes a while to find the right combination for each person.

    Deb x
  • Scampdog
    Scampdog Member Posts: 43
    edited 30. Nov -1, 00:00
    Sending (((BIG HUGS))) your way ! hope to goodness they get you sorted soon !, on the bright side they are keeping an eye on you .....we have much to be thankful for in the UK in the NHS they do a wonderful job for so many of us .
  • trepolpen
    trepolpen Member Posts: 504
    edited 30. Nov -1, 00:00
    have they put you on any antibiotic ? some can help with RA but they dont like giving out them because they are worried about having infections they cant treat in the future

    it is pretty normal for them to stop drugs if you have some infection & then go back on them afterwards , so hope they will sort you out friday
  • Paleogirl
    Paleogirl Member Posts: 75
    edited 30. Nov -1, 00:00
    Hi thanks Sharon

    They took me off the hydroxycholquinine and I began to feel a bit better. It seems this was making me sick and spaced out. So now I'm back at square one with no treatment. They want me to start the methotrexate again on Thursday. They were supposed to call but didn't. So I'm in limbo at the moment. I've got to see them on the 18th so will know more then xx

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