I've been told I have Ehlers Danlos Syndrome (EDS) which explains the muscle and nerve condition affecting my stomach and intestines, fainting due to unstable blood pressure and heart rate, the joint hypermobility and instability, the premature widespread osteoarthritis and the poorly functioning bladder muscles. That said, my RA is in remission at the moment, so I shan't be too ungrateful and whingey. I am a bit tearful though.
I got a letter that said; "She has TMJ operation planned for April which I understand will be a big operation. She is keen to be well, although whether that will be truly possibly is uncertain"
Gaaaah. Who wants to receive a letter like that?! It's really upset me.
Fortunately, my surgeon is confident in his abilities and he doesn't seem fazed at all but I'm nervous.
This is my third time of off sick in the last few months. I had a flare up of my stomach condition in November and had 3 weeks off sick, one day in December due to a bladder infection and I've been off the last couple of days with a sinus infection and yet another bladder infection. I'm scared that I'm going to get into trouble at work. I'm now at Occupational Health referral stage which is fine but there's no magic cure for EDS, only supportive treatment. I've not even started getting better yet. I'm still on the slow decline.
I really like my job and I need to work for my mental health. I also have limited paid sick leave and I will need it for my post surgery recovery. That's a big worry. I feel like I'm being crushed and I don't know how to change things.