I'm not (strictly) 100% new but I haven't posted on here in a very long time and I never posted regularly when I first arrived! I was diagnosed with seronegative arthritis in 2009 when I was 21 and studying for my finals at uni (I'm now about to turn 30). It affected both of my knees with pain and swelling, but also shoulders, toes, fingers, and I had real trouble getting around, and doing anything really. Since then I have been incredibly lucky - I was put on Methotrexate which really helped (apart from all the horrid side effects which I just accepted as I figured they were much better than the pain!) and I had a long period of mostly being in remission until 2013, when I had a major flare up in my knees again that lasted several months. I've also got some other auto-immune things going on (Crohn's, and occasional eye inflammations) and so at that point I was put on Humira, and now take both meds which so far has kept the pain and swelling under control. I've been in remission again for a long time. Although I can't really walk for long periods of time without getting very stiff and tired, and over the last few years it's started to affect my hips (although I'm not sure if that's because they're taking up some slack for my knees?), I mostly get by without too much trouble from the pain.
I know I am one of the lucky ones because my disease is under control and has been for a long time and I can largely go about my business and forget about it. But aside from that, the fatigue is definitely one of the worst things and I don't know if it's a symptom of the disease or a side effect of the meds. I get sick all the time
, and if I ever have even the mildest head cold, it's always accompanied by several days of extreme fatigue. If I have a bad flu sometimes it can be up to two weeks of feeling completely drained of energy, like somebody has cut off my power supply, and the simplest things (having a shower, getting myself a glass of water) leave me completely exhausted, dizzy and faint. It does go away, very gradually, after a few days, so again I am luckier than people who have to deal with fatigue all the time, but I just wondered if anyone else has the same kind of patterns to their fatigue? I've always assumed it hits me after illness because of the weakened immune system from the MTX. It can be very demotivating and depressing and I find it hard to explain to other people how debilitating it is when it often looks like there's nothing else wrong, or like I should be getting better. Anyway, it'd be nice to hear from other people in the same boat. Thanks folks