Hi all, I'm recently diagnosed with palindromic rheumatism and experiencing quite a lot of bad flare ups despite being on long acting naproxen. The next step is hydroxyquinine and I haven't really heard anything good about that! However I wondered if anyone had any other suggestions in terms of meds or managing flare ups?
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Welcome to the forums. I am sure you will find support, advice, light relief and friendship here. There are others on here who have palindromic arthritis and I expect they will be able to offer you help and advice.
If you haven't already found it, Arthritis Care has a factsheet on Palindromic rheumatism which you can download here:
https://www.arthritiscare.org.uk/do-i-h ... rheumatism
Arthritis Care also has a helpline which, if you would like to talk to someone about your worries problems, will be able to advise you. It is a freephone no. and is available 10 - to 4 Monday to Friday. Its 0808 8004045. Do give them a ring, but please remember they are volunteers and are not medically trained.
I am one of the moderation team and we all have one or more of the arthritis "hanger ons" or look after family with the same.
Best wishes
ChrisK
All of us can relate to tiredness, and those of us with an auto-immune kind the flares and trying various meds until we find the right combination. Naproxen is an NSAID (non-steroidal anti-inflammatory drug) whereas hydroxy is a DMARD (disease-modifying anti-rheumatic drug) and is not unusual to take the two together. I have not taken hydroxy but I don't see it as being any different to the other medications; the aim of the game is to bring disease activity under control to prevent joint damage and, in so doing, improve the quality of life. DD
If my PsA is playing up I don't bother going to the GP as they do not prescribe my meds and only have a surface understanding of the disease. DD