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michellelouisa
michellelouisa Member Posts: 8
edited 18. Sep 2017, 14:39 in Say Hello Archive
Hi all

I am new to the forum. Its taking a while for me to get a proper diagnosis. The latest one is probable peripheral inflammatory arthritis seronegative.
It affects my hips,knees fingers,top of spine and recently my left ankle.
Two months ago I left my job. I had been a support worker and care assistant for the last 15 yrs. I was struggling with the 12hr shifts and moving and assisting. I began to feel so low and still do at times. I really want to work and hope I can find something more suitable. I am currently receiving ESA and waiting for a medical. I think this forum will help me to become more positive knowing that you are not alone.

Comments

  • [Deleted User]
    [Deleted User] Posts: 3,635
    edited 30. Nov -1, 00:00
    Hi Michellelouisa
    Welcome to the forum so glad you found us, so sorry you are so low at the moment and hope that by joining the forum you will be able to join in with others and get some answers to your questions.we have a free helpline if you want to talk to a person it is 0808 800 4050 any time in the day.
    please in the mean time join any of our forums Chit Chat and LWA being the most popular.
    All the best Christine :D
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Hello Michellelouisa and welcome to the forum. You do sound a very positive person but no wonder you finally had to give up your job. It sounds a very physically demanding one for someone with arthritis. I hope you can soon find something easier on the joints.

    You are definitely not alone though. We all support each other on here as we all know what it's like.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • michellelouisa
    michellelouisa Member Posts: 8
    edited 30. Nov -1, 00:00
    Morning
    Thank you for replying.

    I have a proper diagnosis now. Ankylosing Spondylitis with Peripheral inflammatory Arthritis. Still in pain especially hips, buttocks, ankle and fingers. I qualify for Biologic Cosentyx injections if my blood results and chest x-ray come back clear. I hope I can have this and it works. Feel so fatigued a lot of the time. It's very frustrating. I have to have the flu jab this morning.

    Has anyone had these injections and did they help. Can't wait to have a good night's sleep. Have increased Amitriptyline but still waking up.

    Thanks Michelle. :sun:
  • [Deleted User]
    [Deleted User] Posts: 3,635
    edited 30. Nov -1, 00:00
    Hello Michelle

    It may help you if you post on the Living with Arthritis page as more people use this section and you may get more answers to your questions.

    This page on Arthritis Research UK's internet site may be of interest to you
    https://www.arthritisresearchuk.org/arthritis-information/conditions/ankylosing-spondylitis.aspx

    Best wishes
    ChrisK
  • frogmorton
    frogmorton Member Posts: 30,137
    edited 30. Nov -1, 00:00
    Hello and welcome to the forums from me too :)

    I had a search on the forums and put in the generic name of the drug: secukinumab and found only 1 hit it being a fairly new biologic.

    https://arthritiscareforum.org.uk/viewtopic.php?f=8&t=48365&p=634288&hilit=secukinumab#p634288

    The person who mentioned it is still active on the forums so you could maybe try PM-ing her?

    Best of luck

    Toni xx

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