Hello all, I was diagnosed ages 2 years old with Stills disease where the Dr told my mam I would go blind and have heart problems and die by the age of 12. When I was 11 in the Red Cross Memorial Hospital Taplow my mam asked how much longer I had to be told I was wrongly diagnosed and I actually had Chronic Juvenile Rheumatoid Arthritis. Anyhow life went on and today I'm coming up for my 53rd birthday. Unfortunately three years ago I lost my mam, my best friend. And since then I have been relying on my sister to help me. Which has caused loads of arguments. So after three years of sitting in my pyjamas watching telly relying on family. My only days out have been to the rheumatologist or GP. I decided to apply for Direct Payments, and I have come on here to see if other people are using direct payments and really to be nosey to find out if the amount the council are taking from me is right. I am paying almost £60 a week towards my Direct Payments out of my benefits for 18 hours a week of care, and they expect me to fund my own cleaning services, Since I had a big fallout with my only sister my dryer is now on constantly so my bills are sky high as I cannot hang washing out, but the council do not seem to care. My house is falling to bits so any savings to repair my roof or level my back yard have now gone out of the window, and the council will not help me with a disabled facilities grant for the yard as they only help with bathing/hygiene. I receive one hour on a morning to help me bathe and dress and one hour on a night for same and 4 hours to help me get out and about per week. Is this excessive or about right?