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I'm due to run out of the methotrexate that the hospital put me on soon, so I phoned my GP to see if they had been given the letter yet explaining that I had been started on the medication and if I could have a repeat prescription. However, I was told it was the hospitals responsibility and that they would need to send over a shared care guidelines before they could take over prescribing. I asked the rheumatology DMARD monitoring blood nurse if she could give me a phone number I could ring to put me through to the hospital when she phoned on my blood test result phone call, but they do not have one and the admitted that the advice line is very rarely listened to (helpful...).
My GP then said they will not prescribe it yet as they can't do that until I have been on it for 3 months and have been stable. The blood nurse phoned me back to say she could get a letter sent over to my GP asking them to prescribe it but she can't sign it and the matron is on holiday. The GP used the word 'unfortunately' a lot. I asked how I was supposed to get the medication, and no one seemed to know. In which I replied that there's no point me taking it then.
On the 6th phone call from them I had gotten so worked up I burst into tears, after this the receptionist said she would try and ring the hospital and ask them to send a prescription but had to leave a message.
Today I received a call which sounds as though the receptionist got a phone call back from a consultants secretary who said she will speak to a consultant to see if they could please write out a new prescription and send it to me in the post. I hope I get given another 6 weeks worth because that will then bring me up to my next appointment, because I have no idea how I will get future prescriptions given to me and I don't want to go through all of this again.
I really hope they do send it out soon and appreciate that the GP has tried to get things sorted but I can't quite see why it all has to be this complicated and why hospitals and GPs can't speak to each other.
I have today started to have a bad flare I think because of how stressful its been and I hope it goes off by Saturday because its my birthday
I do have one quick question, as I made an appointment with my GP next week (to get some more sulfasalazine which seems fine to prescribe for some reason...) Do I need to get the folic acid on prescription or can I buy this from the shop? (I only take 1 tablet on a Friday and take the 4 Methorexate on a Monday). I'm just worried they won't prescribe me that either.
Sorry for the rant and I hope everyone else is having a nice week.