Thought I would post an update. So I had an appointment with the main rheumatologist at my local hospital on Tuesday after being referred to her by my usual rheumatologist. My lumbar spine MRI showed mild deterioration and fusion but nothing else major (horaaay!) However, the rheumatologist was very concerned how over the past year my liver function has been fluctuating, having a raised LFT in bloods then I would drop back within normal limits. Given that I also have positive anti-nuclear antibodies (ana) in my blood she thinks I may have a condition called Autoimmune hepatitis. Sometimes your liver can produce the ezymes which leak into muscle and will be testing me for this also. I don't have a lot of the symptoms for AIH but given the raised liver function she can't be sure.
This came abit of shock, and personally I'm hoping it is not this condition. She also did more bloods to test for other autoimmune disorders and giving the results of these bloods I may have to see a liver specialist. It has been a craaazy few days here, and I've got my fingers crossed it's good news and not bad.