juvenile rheumatoid arthritis

Rhian2301

Hi im new to this. Does anyone else suffer from this. I was diagnosed at the age of 13 and now im 35 and the disease has spread throughout my body, making me bedbound atm.

dreamdaisy

Hello, it's nice to meet you but I am sorry you have had to find us. I was born with auto-immune issues so my developing psoriatic arthritis was, on reflection, no great surprise: at least it had the decency to hold off until I was thirty-seven. I also have OA (osteo arthritis) and I too have spent today in bed as I am not very well. I started with one joint, now it's around forty so something hurts somewhere all the time: I'm used to it now.

Does anyone else in your family have auto-immune issues? My parents missed the genetic bullets they happily fired in creating me but back in those days nobody knew about genes and genetics. DD

barbara12

Hi Rhian2301 and welcome to the forum
I am so sorry you are suffering like this, I have a young friend age 14 now, I think..I am 67..he started around 7 years old..at the moment he is trying out new Damards..I do feel for you being so young..have you been put on any meds at all..

stickywicket

Hi. I think, if I were to be diagnosed today, it would be JIA. Back in 1961 they said Stills because, it was Stills if you got RA before you were 16. I was 15 but it probably all kicked off 4 years before when they thought I had rheumatic fever.

I've never been bedbound except for short periods in the early years. How are you now? Which meds do you take? I do wellmon methotrexate and hydroxychloroquine but the damage to my joints was done long before them.