Some of you may have read my post about changing meds to attempt to get better control of the RA- and so the saga continues.
Lat week after my 6 monthly review it was suggested adding abatacept to the current trio of Sulphasalazine, plaquinel and leflunomide.
Well the abatacept idea was short lived. I had a phone call from a really sympathetic and caring rheumy nurse manager at 6.15 pm last night! She told me the consultant has been reviewing my past bloods etc and now thinks the abatacept would be too risky given my neutraphyls keep dropping below the minimum recommended level and leave me open to more serious infections. So potentially they'll also stop the leflunomide- but no suggestions as to what might follow. To say I'm frustrated is an understatement. :roll: The nurse was so kind, and worried about how I'm coping with ongoing inflammation and pain in my hands and wrists, but as yet there are no ideas beyond pulling the leflunomide and increasing the sulphasalazine- but that gives me tummy problems and a really sore mouth.
Some days I long for just a week of no pain, and try desperately to remember how simple life was before RA and bronchiectasis became my norm...….but maybe it's better to forget that and focus on the positives of being surrounded by caring friends and family and supported by a medical team that seem genuinely to care about me as an individual. And of course crossing my fingers(if only I could, but sadly they don't bend much anymore!!!!) for a better solution soon.
Sorry for the moan, but at least you lovely folks understand the frustrations.