Rituximab vs Tocilizumab
Squarefish
Member Posts: 2
Hello,
I am new to the forum.
I am 53 yrs old and have been living with rheumatoid arthritis for 13 years. For the majority of those years, I have been using etanercept injections and my condition has been under control and I have been leading a fairly active life.
However 2 months ago everything went haywire and I have pain in almost all my joints.
My consultant said we need to change the medication. He has asked me to decide between the drugs Rituximab and Tocilizumab.
The former being administered 6month/yearly, with 2 x 4hour sessions at the hospital. The later is as my last injection, and is administered, by myself, weekly.
Could anyone give me some feeback of the 2 drugs, to help me make this decision?
Many Thanks in advance,
Elaine
I am new to the forum.
I am 53 yrs old and have been living with rheumatoid arthritis for 13 years. For the majority of those years, I have been using etanercept injections and my condition has been under control and I have been leading a fairly active life.
However 2 months ago everything went haywire and I have pain in almost all my joints.
My consultant said we need to change the medication. He has asked me to decide between the drugs Rituximab and Tocilizumab.
The former being administered 6month/yearly, with 2 x 4hour sessions at the hospital. The later is as my last injection, and is administered, by myself, weekly.
Could anyone give me some feeback of the 2 drugs, to help me make this decision?
Many Thanks in advance,
Elaine
0
Comments
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Hi squaarefish
Welcome to the forum. We are all friendly and understanding and will try and make you feel part of the forum, we all have various levels of pain and know what you are going through, we also have various forms of Arthritis. The most popular forums are Living with Arthritis and Chit Chat.
All the best Christine0 -
Hi Elaine and welcome from me too. I'm sorry you're flaring. It sounds like a bad one and, yes, sometimes we have no option but to increase or change the meds.
I get by on meth and hydroxy so I've no personal experience of biologics. I only know what I read on here and that leads me to conclude that it really is a matter of 'horses for courses' with all the meds we take, not just the biologics. Some suit one person and others another. You can read about them both here https://www.versusarthritis.org/about-arthritis/treatments/drugs/
I hope someone will be around soon with some personal knowledge but I do hope that, whichever one you choose, it works well for you.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
It's a shame that your good run has come to an end but all things do. I have had a number of biologics over the years but neither of those two. I can recall people on here who have had both, either individually or in succession, but I cannot tell you who or when they last posted.
What works for one is anathema to another, the only answer is stuck it and see. Good luck and I hope you are soon restored to better health. DDHave you got the despatches? No, I always walk like this. Eddie Braben0 -
hi , welcome to the forum , I have been on both , Tocilizumab was ok , but my joint was still playing up so was changed to Rituximab , I real got on well with it but I need several joint replaced & for this reason they stopped it ,
the main problem with Rituximab in the time it takes for the infusion , but I would recommend this over any of the anti-tnf biologics , I had no side effects , hope the new drug helps which ever you chose0 -
Hi. I can only say I’ve had Retux not the other. After going through the paperwork with specialist nurses I soon found myself in the medical day care having the first round. It took about 7 hours to complete with half a bag of IV steroids at the beginning and end. A week off to get blood tests then week after same procedure repeated . Only problem I encountered last year was a reaction to the steroids. I was manic. But that’s just me So a few months ago I had it again minus them but had a reaction. Don’t be put off as I get loads of drug reactions. It really helped by RA. So I’m on a new quest.0
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