Hello all, I thought I'd post an update as I haven't been on here for a while.
I'm still on triple therapy Meth, Sulph and hydroxy but obviously it's not working as it should. Pain/inflammation has now spread to my wrists and thumbs and to a small degree my fingers and toes. I still have neck pain daily, tweeks in my knees and my right ankle is not behaving. My knees haven't swollen lately though and bizarrely the chest pain has now all but gone.
I am still getting fatigue and I would say that is worse. I was supposed to see the Doc last week but it was postponed until Aug 23rd which incidentally is better for me as I want to discuss him prescribing some pred as Wifey and I are going on an 8 day cruise in Sept and I would like to be active on my holiday. I still haven't gone onto Biologics yet and I suspect it would be better to wait until after the cruise to do so as infections can spread on ships.
I had an appointment with Urology last week and he wanted to CT scan my kidney as I have had a small kidney stone apparently but it hasn't given me any trouble (4mm when last scanned 20 months ago) He seems happy for me to pass that naturally, I assume by getting me to drink copious amounts of water although I am not doing so as I like a lot of tea. I asked him to hold off as I assumed my rheumatology appointment was going ahead the same week and I also assumed that I would be getting a full body scan before they put me on Biologics. Well as I pointed out that was postponed so it looks like i'll be going without for now. Why can't different departments co ordinate?
It would be just my luck that I will get a blockage or the like with my kidney stone and need urgent surgery whilst on Anti TNF's (biologics) and we all know the danger of infections in hospital.
Oh the joys of getting old and I'm only 55