Sorry for the long message. Just a bit of background. I’m 32, been having symptoms for almost a year now and I’m absolutely stumped as to what it is. I am a physician but don’t have much rheumatology experience so it is frustrating me even more. My symptoms are:
Painful joints (mostly ankles/feet/hands) always in the morning or after rest
Frequent mouth/tongue/throat ulcers
Frequent sore throats
Scalloped tongue and swollen lips
Poor temperature regulation
Frequent flu like symptoms
Peripheral oedema up to knees
One episode of blue nail beds
It has completely taken over my life. I spend a lot of time in bed. Looking to find answers I have had regular blood tests. My ESR is always above 30 and is usually 37-43. My CRP is around 20-30 yet my WBC are always normal. Rh factor was ‘positive’ once at 13.5 but negative 3 other times, all ANA negative, anti-CCP negative. Lupus anticoagulant weakly positive, e-GFR between 65 and> 90. Liver, thyroid, U&Es, vitamins, FBC all normal.
It’s taken me almost 5 months to get referred to the rheumatologist and now I’m waiting another few months for an appointment. Does anybody have similar issues? Or any pointers as to what it could be? Or even what I might expect to happen next? Really struggling quite a lot with this.