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Daveym3
Daveym3 Member Posts: 3
edited 28. Nov 2023, 14:05 in Living with arthritis
Hi Everyone. Just saw the tv ad for the first time so visited the site and signed up. I’m a 51 year old with Crohns, Ank Spond & RA. I’ve been on Humira for around four years and found it very good. Currently having a bit of a flare up so taking 40mg of Pred too. Just wanted to say hello to you all and looking forward to getting to know you. Dave

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  • Brynmor
    Brynmor Member Posts: 1,755
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    Hi Dave and welcome to the online Community. Hope you liked the advert - we are getting a lot of new members joining up now 😃

    Glad to hear it sounds as though you have your condition under control. Do join in across the forums and add your thoughts and helpful advice. You will be welcomed.

    All best wishes

    Brynmor

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
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    Hello, I have PsA, OA and fibro. I take humira along with methotrexate and they are controlling things which is good. For the OA I take pain relief and combine rest with exercise. DD

    Have you got the despatches? No, I always walk like this. Eddie Braben
  • Daveym3
    Daveym3 Member Posts: 3
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    Hi DD, sounds like you’ve got plenty to contend with. Hope things are good at the moment. One of the main things I encountered was pain relief. Because of the Crohns, I can’t take any nsaids so have to take Oxycodone twice daily. It’s not ideal unfortunately but it definitely does the trick. Hope you and all your family are doing ok with things as they are. Dave x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
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    I never found NSAIDs much good at pain relief, apart from diclofenac so of course that was stopped a few years ago because of the future risk of heart trouble: **** future risk, I reasoned, I'm in trouble now! I loved feeling better when taking oral steroids so took a year to knock those on the head, feeling rubbish is what this is all about. I think it is a side-effect of the meth and humira because I always feel better in myself when I stop them due to other illness. I've learned to do without all the stuff that seemed to help because none of it was a solution, just a plaster: my thinking is that to avoid the pain of ripping off a plaster don't wear one in the first place.

    Due to PsA and a bout of tonsillitis I have spent fourteen out of the fifteen weeks of 2020 indoors / socially distanced / now shielding but I am pretty self-reliant and able to keep myself occupied. Things could be better, I am pleased they are not worse and at least we have some sunshine: imagine doing this in the depths of November, December, January. How are you coping with shielding? DD

    Have you got the despatches? No, I always walk like this. Eddie Braben
  • frogmorton
    frogmorton Member Posts: 29,489
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    Hi Dave

    Lovely to meet you glad you saw the adverts I have been spotting them too a lot ATM. They are good and even better if they help people find this community.

    I can't take NSAIDs either as they give me a bad belly. You don't want to know!! Luckily I can tolerate Arcoxia a COX2 inhibitor so haven't had to resort to the Oxys.

    Have you tried pain patches at all? I have Bu-tec ones although I am in the process of cutting down ATM in the hope I can get off them for a good while.

    I hope you find the community as supportive as i do and that you decide to 'hang about''