Exhaustion!!!

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Comments

  • Deb73
    Deb73 Member Posts: 24
    Yea same as that with work,, im sure that's contributing to more pain aswell because im normally so busy and yea i have noticed tgat they are not working as well as they should be.
  • hubie
    hubie Member Posts: 21
    They will give you stronger tablets but in my experience the side effects are worse. You are right when your mind is active with other things it is better. Keep positive and if I can answer or help in any way just ask. I'm sorry the world has gone into lockdown just at the time you need help from the consultants.
  • Lilymary
    Lilymary Member Posts: 1,751

    Hi Deborah, I’m new to this as well. Just been diagnosed with severe OA in my left hip and not much better in my right. Looking at the Xrays this has obviously been building up for a very long time (and it runs in the family), so I’m amazed at how it has gone from a bit of pain down my leg and a slight limp to severe pain my my hip and leg and having to drag myself up stairs in only 6 weeks. I suspect they’d find similar horrors if they xrayed my knees.

    As to fatigue, I’ve had ME for the last 3 years (at the mild end of the scale), but this seems to have gone as quickly as it arrived, around the week I was diagnosed with OA. I’m fairly certain I can attribute this to the anti-inflammatories the doc put me on. So “whoopee” says I, “I can get back out there and get on with my life again”. “Just one god-darn minute” says the OA, “it’s my turn now”. 🙁

    I’ve had days of feeling whacked since this diagnosis, I slept one day for nearly 16 hours, and often fall asleep on the sofa in front of the telly. But it’s a different tiredness from what I experienced with ME, much less brain fog and physical sluggishness, more just wanting to sleep. Like you, I was wondering whether this is part and parcel of OA (or maybe the pain relief I’m on). I can’t tell you how frustrated I am at finally having my life back within my grasp only for this to hit me. But looking at my Xrays, I guess I should be grateful that I’ve been able to carry on pretty much pain free for so long.

    I’m still trying to work out anew how to pace myself for this condition, both in managing pain and fatigue, so any tips from others would help me too.

  • Deb73
    Deb73 Member Posts: 24
    Hi lilymary.. That's almost exactly identical as how its happened to me!! And yea its just trying to adapt now i think..
    Seeing as you're new to this too hopefully we may benefit from advice from others its already making me feel a bit better that someone else gets it,,
  • Deb73
    Deb73 Member Posts: 24
    Hi again Hubie. Yea i suppose the timing could have been better 😂 and thanks so much for your replies they are very helpful.
    I think talking about it ti someone who understands is just going to be a massive help so thank you
  • hubie
    hubie Member Posts: 21
    Talking is key. To be honest I was very angry at the start as I was around 27 but then as I came to terms with it I thought I've had 27 years without pain some people don't even have that. Pain isn't good company but you will find your own way of getting through it.😁
  • Deb73
    Deb73 Member Posts: 24
    God i can imagine that you would be severely angry!! Its the little things at the moment I've got 2 beautiful grandchildren,, kyle who is 5 and lilly-may who is 3 and they have always been used to me taking them outt to the field or park running around or playing football so it upsets me that i cant. But i know there is a lot of stuff i can do i suppose its just adapting.
    I will keep talking im very good at that.. Its what I do for a living 😊.
  • hubie
    hubie Member Posts: 21
    Now that's something that will keep you active lol. Keep positive😁
  • Deb73
    Deb73 Member Posts: 24
    Thankyou.. You too!!! Hopefully speak soon hope you manage to sleep ok, 😊
  • Lilymary
    Lilymary Member Posts: 1,751
    edited 22. Apr 2020, 08:17

    Hi Deborah, sorry, I haven’t quite got the hang of this site yet. Would have replied sooner. When you say our experiences are similar, do you mean ME disappearing and OA starting? Did you start taking anti-inflammatories around that time? I’m curious to find out whether there is a link. I’ll be talking to a friend later today who had most of her adult life blighted by severe ME, but managed to finally shake it a few years ago and is almost unstoppable now, until she got lung cancer last year (successfully removed - has never smoked etc), but she’s out jogging again already. Anyway, I know she’ll be interested to hear others’ experiences of beating ME.

    Sorry, I know this is an arthritis site, not wanting to go off topic. The OA and all the grimness that goes with it is my main concern now. Typing this lying in bed with knees propped up looking wistfully at the sun and blue sky outside 😕 Wondering what I have to do to get this to settle if it’s a flare up, or wondering whether this is the new ‘normal”. 😕😕😕 At least my ME didn’t hurt....

  • Deb73
    Deb73 Member Posts: 24
    Hi lilymary,, my apologies i meant how you described the OA, and how quickly it got so bad,, sorry i should have explained it better.
    Its quite weird though you say about your friend who had lung cancer last year and haf it removed well my auntie had exactly that this year.. Glad to say she is ok too and im glad your friend is. Also like myself you are wondering if this is a flare up or whether this is just how it is. Ive been in pain now for 6 months now and it's only getting worse my hands are suffering now too.
    But hopefully when corona has passed will move on to the next stage which is steroid injections to see if they help.
    Things could be a lot worse so im just going to enjoy the sunshine over tge next few days 😊
  • Lilymary
    Lilymary Member Posts: 1,751

    No worries Deb. Sorry to hear you’re in so much pain. I’m new to this so I don’t know what to expect. I understand why we need to exercise, even aerobic excessive, but I’m in too much pain for that and exercise makes it worse. My physio has told me to rest it for a few weeks till it settles down, but I’m getting so much conflicting info I don’t know which way to turn.

  • Deb73
    Deb73 Member Posts: 24
    Hi lilymary, yea i know what you mean i think because it does affect everyone so differently theres not really any one answer that can help? There are a lot of different stories on here but i suppose the one thing we all have in common is pain unfortunately,, in a way its good to know that someone understands your pain because i dont know about you but i feel like sometimes people think im exaggerating!!
    As for exercise i bought a cross trainer which is really good because it doesn't put any pressure on your joints,, i can manage a few minutes at a time before i have to stop but i at least feel like im maybe strengthening my legs a bit?

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