Hi everyone...I'm new and just joined.
Good evening everybody. Im Sunflower, as I'm not sure if we are supposed to give our true names.
I am sure that the advertisement from his versusar arthritis, with the lady struggling to get out of bed we can all empathise with.
I know I'm not alone living in pain due to arthritis so here's my story.
I have lived with pain for over 40 years, I will be 62 this year. When I first started having severe pain I was teenager and told it was a slipped disc and to lay on a hard floor and rest. it took Dr 15 years before somebody decided to give me x-rays and eventually a scan, I was then told I had osteoarthritis and annulus bulging. And my condition would not get any better and I would probably eventually need new knees and hips.
As you can imagine I was was shocked to find out in my 20s I had arthritis, but also relieved to have a diagnosis as people kept thinking I was a hypochondriac. Because my pain 1st started off periodically.
Until eventually I was so bad I was housebound I could not walk without a zimmer frame, I was then started on spinal injections and stronger painkillers, until eventually I was able to walk unaided by zimmer frame. and I started to have some form of normal life for a short time.... I am sure it was the laying on a hard floor and resting so much that made me so incapacitated.
I was adamant I would not live off benefit, I wanted to raise my three children and buy my own home one day, and have some kind of life, even if it was not a full active life. I had to change my career so started evening classes learning computers for office admin.
I am happy to say I was able to achieve this it wasn't easy but very rewarding. I don't have a lot but what I do have I got on my own.
My pain medication has increased over the years and now I am on Oramorph when I cannot stand the pain anymore, as well as sleeping tablets to help sleep through the pain.
My condition started in my spine but now I suffer with all my joints. I'm even thinking of having my knees done. So I can have some type of quality of life before it's to late.
I still work but I have to say I'm finding it harder as I get older, let's be honest people don't want to hear about how much Pain we are in. So we keep quite I'm suffering in silence.
I have adjusted my life as best I can, I bought an electric bed, and electric recliner chair, but what I can't buy or adjust my life is a new body.
So maybe chatting to other people like me online... I hope that somebody on here might have advised on how to control pain and still have a life. Also if they have had new knees has it improved your life.
Well that all from me tonight, sorry if I bored you. Good night.
Comments
-
Welcome to the Versus Arthritis online Community Sunflower 🙂
It's fine to use your own name if you want to when you sign off, but I suggest not your full-name online. I am very pleased to see that our recent Advertisement lead you to finding support on here.
You do sound to have had a very long 'journey' with your Arthritis. I am not going to respond to all of your queries, I'll leave our lovely members to do that, but I am attaching a link to an 'old' thread during the summer of 2012 when we had a lot of people havening knee surgery:
I hope the thread it helpful and that you decide to keep coming back!
Ellen
0 -
I'm new, on the whole methotrexate has saved me a lot of aggro with Rheumatoid ,I am now having odd problem with osteo like a back that is not in a very good state.Auriol
0 -
Hi @auriol
welcome to the community, it's lovely that you have joined us. I am glad that Methtrexate is working for you and you are benefitting from it. Sorry that you are struggling with osteoarthritis in your back. I am gussing this is very painful?
We have a dedicated section of the website on back pain that you might find useful
We also have some video clips on back exercises that you might find useful
I am sure our nmembers will make you feel very welcome and share their experince with you. Let us know how you get on
Best Wishes
Sharon
0
Categories
- All Categories
- 12.1K Our Community
- 9.6K Living with arthritis
- 777 Chat to our Helpline Team
- 391 Coffee Lounge
- 20 Food and Diet
- 223 Work and financial support
- 6 Want to Get Involved?
- 169 Hints and Tips
- 398 Young people's community
- 12 Parents of Child with Arthritis
- 38 My Triumphs
- 127 Let's Move
- 33 Sports and Hobbies
- 244 Coronavirus (COVID-19)
- 21 How to use your online community
- 35 Community Feedback and ideas