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Strawberry33
Strawberry33 Member Posts: 2
edited 28. Nov 2023, 14:05 in Living with arthritis
Hi, my name is Louise and I was diagnosed with psoriatic arthritis back in 2010, then fibromyalgia a few years later.
I'm ill health retired now as I just couldn't cope with these illnesses (plus several other chronic conditions) and work.
I was on MTX from 2011 until Jan this year due to liver issues, and I'm just waiting for the ok to start Apremilast as both my joints and skin are flaring badly now, fingers crossed I will get the ok in the next few days.
Looking forward to connecting with others who are in a similar boat.
Thanks :) :)

Comments

  • Chris_R
    Chris_R Moderator Posts: 800
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    Hi Louise

    Welcome to the Arthritis Community.we are all friendly and understanding and will try to make you feel part of the forum the most popular forums are Living with Arthritis and Chit Chat.

    Hope all goes well Christine

    Need more help? - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • frogmorton
    frogmorton Member Posts: 29,486
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    hi @Strawberry33 lovely to meet you and welcome you to the forum from me too.

    I am sorry your liver fell-out with MTX 😕

    Not a nice time waiting to start a new medication and being without is it? I hope you don't have to wait much longer.

    Take care and ((()))

  • Gillyhigson
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    Hi new here got austio arthritis ibs and asthma severe sleep apnea with syndrome dyslexic dyspraxia and dyscalcula vertigo degenerative disk disease had tree t.i.a..s some days i dont want to be alive the pain is so bad hi
  • Sharon_K
    Sharon_K Member Posts: 460
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    Hi @Gillyhigson

    I am so sorry to hear you are having such a rough time with pain, it sounds like you are at a very low ebb indeed. Unfortunately I think many of us have these dark days but it is always worth remebering that nothing stays the same and that this situation too will change.

    Pain is very complex and you might find it useful to look at our section of the website that covers pain here.

    Also arthritis can be very difficult at times to manage emotionally and you might like to look at our section on how to manage you emotions here

    We also have an amazing Helpline which is free to call Monday to Friday (9am-8pm) on 0800 5200 520

    Best Wishes

    Sharon

  • frogmorton
    frogmorton Member Posts: 29,486
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    Hi to you Gillyhigson

    Gosh you have a lot going on! You must be a very strong lady to cope with it all. Most people would struggle to cope with a quarter of what you have.

    Pain gets you down that is a definite it is really hard to think of anything else when it's so bad. I manage mine in a variety of ways. Pain relief of course as well as warm wheatbags (the kind you put in the microwave) as well as anti-inflammatories. I also did one of those courses that the old Arthritis Care ran called 'managing your long term condition'. It taught me how to distract myself and some coping techniques and i met some lovely people in the same position as me.

    This is a lovely forum everyone is so kind and supportive if you've got any specific questions we can help with we'll do our best to help.

    Take care and Gilly - keep posting ((()))

  • Grace111
    Grace111 Member Posts: 30
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    Hi Gilly

    wow you are having an awful time of it. Pain is an awful thing because it's just always there isn't it. I am a similar age to you and I have had arthritis for 38 years now. The one thing I have learned is to just take one day at a time. On a good day I soak it up and try to enjoy it as much as possible and on bad days I remember that it will pass and remember the good days. I try to be really gentle with myself and treat myself to a day on the couch with a good film or sometime sitting in the garden. Like Toni, I have taken time to discover the best techniques to get through and used all the medication I can to support myself.

    We are here if you want a chat, let us know how you are getting on

    Gentle hugs

    Grace111

  • wazz42
    wazz42 Member Posts: 233
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    Hi gilly,

    I understand where you are coming from, indeed I’ve felt that it was all too much too. You sound lonely, so you've come to the right place! Feel able to moan, explain, unload all those negative emotions as soon as you can, and then you can start to think about the future in a better way. Are you keeping in touch with family and friends? They can help too.

    How about heading to Val's cafe, a wonderful place where you can have a virtual cup of tea or coffee, cake and a chat with your new community friends. Here’s the link https://community.versusarthritis.org/discussion/comment/667269/#Comment_667269

    I try to use distraction to help me manage pain, tv, reading that kind of thing. I also used to knit so I’ve found my needles and am starting that again - I think it will be a dolls blanket, I don’t think I can go wrong with that but you never know :)

    Do keep posting, I’ll look out for you

    Take care

    Yvonne