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I'm new to this website and havent posted before. I'm not sure what i'm looking for, maybe some advice or just to hear i'm not alone.
I'm 28 with two young children (2 and 6 months). I initially went to my GP with severe lower back pain about a year and a half ago. After several Rheumatology appointments my diagnosis is suspected Psoriatic Arthritis however my MRI and other scans have all came back with no sign of inflammation.
My condition continues to worsen each month whilst i wait for my consultant to make her next move. This has obviously been delayed by COVID19. My knees have started to swell and give way, my bones feel like theyre rubbing together and i cant walk very far at all without needing to stop.
I'm now unable to do daily tasks such as driving, showering, getting dressed and solely look after my children without the support of my partner. Thankfully he is furloughed but due to return to work soon. I take pain relief medication daily which turns me into a zombie and doesnt help much with the pain or swelling in my joints. I'm getting new pains/symptoms all the time and im so worried my condition is worsening whilst im waiting for a proper diagnosis and treatment.
I dont know how to cope with feeling frustrated that im not getting anywhere, i dont even know what my condition is. im worried that i cannot look after my children and with the current COVID19 guidelines any extra help from family and friends isnt aloud. I dont know how i'm going to cope when my partner has to return to work.
How do you cope with the pain at home? is there anything i could be doing at home? i have physio appointments over the phone and im told to exercise to strengthen me but this is nearly impossible for me. i cant get down the stairs without my knees giving way.
How do you look after your children whilst struggling with mobility and pain? They are too little to understand why i cant do certain things and it just breaks my heart.
I'd love to hear how others (especially mums) cope at home if they havent already had their treatment. Or if anyone is in a similar situation to me and awaiting a diagnosis?
I'm sorry if none of this makes any sense. I'm really at a loss. I appreciate its hard for everyone whilst hospital appointments are limited. i just don't know what else to do.
Thanks for reading,