I have been recently diagnosed with RA in April, a month after my 50th birthday. I am really really struggling with coping with the pain at the moment. Imfact i am struggling with everything going on as it all seems to have gone wrong with terrible timing. I am getting hardly any sleep and spend most of my time during the day trying to catch up from the previous night. On top of this I have Sleep Apnea and am using a CPAP machine to try and manage my sleeping.
I am currently taking:-
Naproxen (2 x 500mg)
Prednisolone (2 x 5mg)
Methotrexate (6 x15 mg once a week)
Sulfasalazine (6 x 500 mg)
Folic acid (once a week)
Amitriptyline (to help me sleep, which isn't really helping)
Tramadol (recently added by my doctor to help me manage the severe pain)
The medication has helped part of my previous pains. My neck appears better, my wrist has improved in the amount of movement I now have. The soreness on the bottom of my feet as almost completely disappeared. For someone who previously didn't take medication, this is so hard to deal with.
The flare up are happening what seems like all the time, and seems to be moving around my body. I don't ever seem to get any time off from the aches and pains.
Due to the amount of medication I am taking, I'm shielding at home. I worked through the Lockdown as was considered a key worker, but consultant insisted I should shield, I told my employer who Furlonged me.
I sat in bed a couple of days ago and thought that getting Corona virus would probably benefit me as I really am struggling to see any light at the end of the tunnel. I haven't been able to see a doctor face to face, I haven't even had a first appointment with my RA consultant, but to be fair my Physio (who I haven't seen face to face but have had a video conference call a few times. She does seem brilliant but limited on what she can do.
I am single living on my own, have four daughters who have been supportive but I try not to discuss my issues with them to save them worrying.
I am at the point of not really knowing what to do moving forward to try and get this manageable cause at the moment it's very much not at all.
I am not sure what I am asking, or what advise anyone can give. Maybe just venting this off might help me to feel better? Who knows.
Is there any advise anyone could give me please?