Hi, Welcome!

The community is a safe space for people living with and connected to arthritis to ask questions and share experiences. Get started by registering here and posting your first comment or question!

Sign In with a Versus Arthritis account

However your life is impacted by arthritis we want to understand more about you so that we can make sure we continue to develop our information, support and services such as the online community.

If you've not already, please take 5 -10 minutes to fill in our survey. All information you provide will remain anonymous and be treated in the strictest confidence. TAKE OUR SURVEY



I received pip during a really bad flare (couldn’t walk) after years of it being under control. 2 hip replacements later and medication I’m feeling back to normal. I rang the PIP line to declare my health is better and the woman on the phone said you’ve just started to receive it (been over a year) and I should just wait for the review next July 2021.

I took a screen shot of the phone call as evidenced that I tried to phone and declare changes but I’m worried.

What should I do?


  • Mike1Mike1 Posts: 610 ✭✭✭
    edited 16. Jul 2020, 08:57

    It is nice to see someone being really honest compared to all the lead-swingers, thank you. I would suggest that you write to them as well and keep a copy of the letter. It could well be that if you wait until next year some "jobs worth" may try claiming that you did not let them know and impose penalties. If they still do nothing put your PIP payments into a separate savings account just in case you have to pay it all back.

    Mike, while some have had experience of bad dealings with various public bodies it is wrong to class all workers in the same light. Almost all are hard working and want to do their best for their 'customers' all the time. In my day I worked in a UBO (Unemloyment Benefit Office) and it is a hard, sometimes heartbreaking job.


  • YvonneHYvonneH Posts: 363 admin

    Hi @danm2010

    It would be best to write a letter, keep a copy with your PIP documentation and then you are covered. Also if you are on the phone it's a good idea to always ask for the name of the person you are talking to, and then record details on your PIP documents (just so you don't lose any piece of paper 😊

    Take care

    Yvonne x

  • frogmortonfrogmorton Posts: 25,233 ✭✭✭


    I would contact them again not by phone rather in writing. It's not a risk worth taking. The number of people you read about getting 'done' for claiming when they aren't entitled anymore......

    I am so glad you are so much better 🙂


    Toni xxx

Leave a Comment

Rich Text Editor. To edit a paragraph's style, hit tab to get to the paragraph menu. From there you will be able to pick one style. Nothing defaults to paragraph. An inline formatting menu will show up when you select text. Hit tab to get into that menu. Some elements, such as rich link embeds, images, loading indicators, and error messages may get inserted into the editor. You may navigate to these using the arrow keys inside of the editor and delete them with the delete or backspace key.