First of all, it's good to know there is support out there so I appreciate that.
This is my story, and I don't feel that I've got to the bottom of a diagnosis yet. I'm 48, and a few years ago I noticed that my elbows, fingers and toes started to ache. After a few months of this, I started to feel unwell, as if I had a virus (my lymph nodes flared up, I felt malaised for about 4 weeks). At the same time as feeling unwell, my fingers and elbows started to tingle and they got stiffer too. I could literally feel whatever this was spreading around my body as if the virus accelerated it. It was terrifying.
Very gradually over the years, the stiffness has turned into slight pain. I've never had any swelling or redness anywhere. The joints that are affected are my finger joints (not knuckles), inside of my elbows, toes, left ankle and left hip. I've had all of the rheumatologist tests which all come up negative. I've also had xrays which slow very slight osteoarthritis in my hands and an mri on my hands that shows absolutely nothing. Every morning my hands are stiff and I have to massage them and move around to get going. During the day I feel slight stiffness and a little pain and if you touch the joints they hurt.
The rheumatologist I saw said that I don't have RA and thinks I have osteoarthritis. I don't understand how osteoarthritis can suddenly spread to many joints bilaterally within a matter of months - it doesn't make sense to me. It seems more like an inflammatory arthritis but the rheumy told me it wouldn't be if my joints aren't swollen or red.
I am going to get a second opinion once the coronavirus calms down a bit more (hopefully). I know that you can't diagnose me, but I wondered has anyone else had a similar experience? I can't find any disease that seems to match the symptoms I've had exactly.