After my diagnosis in March, I have still heard nothing about any sort of treatment - I've been referred for steroid injection and hip replacement. After a chain of phone calls to different numbers, I finally got through to the right department to be told they're still not doing any appointments. I'm just one of thousands of sufferers around the world aspiring to actually be a patient while cursing the pandemic.
Meanwhile I'm watching the rest of my body suffering the consequences of a dodgy left hip. Now that my right leg is doing most of the work, it's decided to join in the pain party with gripes and frightening rifle-shot sound effects, I suspect just to remind me that I have OA in that joint too and it's feeling left out. My right shoulder, which gets all the grief when I'm out using my stick, is beating me up in the night, and my lower back is on strike due to the weird positions I have to get into to reach my left foot, or anything else on the floor.
Not only is going for a walk of any description out of the question due to the pain, both during and after, but I can now only walk at half speed and even then I'm exhausted by the time I've got to the village post office. I managed better when I had mild ME. Going away when lockdown is over will be a waste of time, as I can't even go sightseeing round visitor attractions, never mind our usual trekking and fell walking activities. From hero to zero in four months.
The future feels rather bleak at the moment. I know I'm lucky that I can still work (it mainly involves standing still and staring at buildings trying to work out why it's leaking, or sitting at a desk writing about it), we live somewhere lovely, and I have lovely supportive husband, family, friends and cats, but it looks like it's going to be a long downhill slide till anything constructive happens. I hate this. 😦