Hi

Creamycustard

Hi all, I’ve recently been diagnosed with GCA and I also have CRPS. It was so nice to come across this site to find people who understand and actually know what these conditions are as not many do, I even have to explain to nurses and doctors what these conditions are. Look forward to keeping in touch.

chrisb

Hi @Creamycustard and welcome to the Versus Arthritis forum.

So, you have recently been diagnosed with GCA and you also have CRPS.

It sounds like you have already been browsing the forum and have been pleased to see that there are other members who understand your conditions.

You may have already visited the main Versus arthritis website but just in case you haven’t these links may be of interest:

https://www.versusarthritis.org/about-arthritis/conditions/giant-cell-arteritis-gca/

https://www.versusarthritis.org/search?query=CRPS

You can also call our free Helpline on 0800 5200 520, or email [email protected] (Mon - Fri 9:00am – 8:00pm) if you ever feel they could be of help.

I hope that other forum members who have similar conditions will be able to share their experiences and offer you some tips and advice.

Best Wishes

ChrisB (Moderator)

Creamycustard

Thanks Chris

Lilymary

Hi Creamycustard (good name btw!), I hadn’t heard of these conditions so looked them up on Chris’s links. I’m still learning what a huge array of problems are caused by the arthritis family. I’m sorry to hear about your diagnosis, it must be tough going, I hope your treatment is giving you some comfort. Sending a hug x

Creamycustard

Thank you so much Lilymary. I never realised either that there were so many problems caused by arthritis and didn’t realise how ill I was actually feeling until I started treatment, I know it’s going to be a long road but it’s good to know what is wrong at long last, big hug back x

frogmorton

Hi @Creamycustard lovely to meet you and welcome you to our forum.

I had heard of both of these conditions via this forum. I have found some threads which might be interesting for you. Not everyone refers to either condition by their Initials/acronym so if you were looking you might have not found them that way:

Giant Cell Arteritis

https://community.versusarthritis.org/discussion/47722/giant-cell-arteritis

Chronic Regional Pain Syndrome:

https://community.versusarthritis.org/discussion/50012/chronic-pain-syndrome

https://community.versusarthritis.org/discussion/51529/crps-and-severe-osteoarthritis-at-35yrs-old

I hope these threads make you feel less alone with it all. Having said that pain is pain - well all live with it, understand and can relate to what you are going through so you are sure of sympathy and support ((()))

take care