For the last ten years I have been managing some sort of arthritic condition. The closest diagnosis I've been able to get so far is "polyarthritis" but I'm fairly certain what I have must be in the spondyloarthritis family. It flares up in seemingly random joints and dies down and is usually accompanied by dactylitis. Until a current unusually bad flareup, however, I've been unable to persuade my GPs to look at it as an ongoing condition rather than a series of isolated incidents.
I've got, for the first time, a consultation with a rheumatologist next week and this is going to sound a bit strange but I'm feeling almost exam-type stress about it. What if I miss my once in a decade opportunity to find out what this is and more importantly get it treated?
Has anyone else found it this difficult to get treatment? And what happens after diagnosis, is it a battle every single time a flareup happens or is it easier once the condition has an official label on it?