Toddler with JIA complains of painful skin

LauraK

Hi, this is my first post here but wanted to know if this was a likely side effect of JIA.

My son was diagnosed with JIA just after his first birthday. He had now been in mediation for around 18 months. It took about 9 months to get his symptoms under control. He currently had weekly methotrexate injections and fortnightly amgevita injections. Although he clearly still has the occasional bad day, generally his joints are pretty good. However when he goes to bed he often cries out and says his bed sheet hurts him like his skin is really sensitive. What I can't work it is of this had just become a habit as he gets attention or whether there is really something going on? Any ideas?

Ellen

Hi @LauraK Welcome to the Versus Arthritis Online Community.

I see your young son has JIA and is on Methotrexate (MTX) and Amgevita, (people may know this on here as Adalimumab). That is a tough call for you and for him.

Having children myself, now adult, I do understand they do sometimes develop habits as you say possibly for attention, but you need to be sure.

What I can say from my own experience is that when I am flaring the bed sheets sometimes hurt me! They actually do. It may be worth taking some advice on this one I know it is possible to get hold of 'Blanket cradles'? They hold the bedding off of your skin.

Just out of interest have you seen this post?

https://community.versusarthritis.org/discussion/52830/information-for-parents

Do please let us know how you get on and take care of yourself too.

Best wishes

Ellen.

LauraK

Thanks Ellen

YvonneH

Hi @LauraK

Here's an extract from the information above.

Contact your rheumatology team (again usually through the clinical nurse specialist) if you're concerned with your child's joints or other aspects of their health that you think could be linked to their condition. Get in touch if you have concerns with medications, including around side-effects.

It seems this would be a good idea in your case, for reassurance if nothing else.

I hope it sorts itself out very soon

YvonneH