Help issues with OT
I have had osteoarthritis in both knees and cervical spondylosis in neck for 25 years now. My knees were so painful and only became worse. I have osteophyes and have had these removed a few times, although my knees still lock up.
Around 10 years ago I started with severe intermittent pain in my lumber spine and the pain was extreme, within one year the pain never went away and when walking I would only take 15 steps or so and the pain was intolerable, with spasms. I bought a rollator and found this help with my ability to walk with my knees and was a place to sit and quickly when the lumbar pain went to extreme, it relieved it some. I had all the test and it was DDD,
Over that period I had OA develop in every joint and needed my toe operating in due to it becoming misshapen m tows have all spread and the ball of my foot is always sore and painful. I can not longer do hand-writing or prepare certain vegetables and such due ti wrists and OA in all fingers and thumbs.
I have tried every treatment available and take Tramadol. I have had Morphine and Codeine but the side effects of drowsiness caused me to fall and I am awaiting an operation for an injury that was caused by one of my falls. I do get very low in mood, due to the constant pain.
I moved to a bungalow that belongs to a HA and it is lovely. I fond I could not use the bath and so had a OT visit and got automatic bath chair. I could not understand why the chair would only go down a little and I was not submerged in the water but more laying on top. I had an over the bath showers and managed to use the chair for the pain I was in and have some water in the bath to soak my feet in.
I then had a OT suggest I have a walk in shower and stool fitter and this was done, but never worked correctly and flooded into my hallway when I used the shower. I had someone come out and she said it was fine because she ran the shower with the curtain across and no water came for underneath. I explained no-one was moving around in the shower and that was why it was not flooding. I was basically 'fobbed off' at a time when my pain was constantly flaring up and I was depressed. I let it go and used the disabled shower at the leisure centre once a week.
Apart from the shower still flooding it is not longer usable by me, my mobility and inability to stand is so bad that I cannot stand without support and cannot get on and off the shower chair which does not have arms, the shower head does not reach to the chair and I would have to hold that in my hand to shower and I cannot do that and use shower gel without getting up and down. I go weeks without washing my hair, due to pain and so my self-care is very poor.
I had realised after the walk-in shower was fitted and on visiting a friends whose automatic bath chair went to the bottom of her bath that I had had a P-shaped bath which the previous tenant had fitted and so the bath part was narrow and to narrow for a standard bath chair. I asked if I could have a standard size bath installed so that with a chair it would be much more suitable for me to self-care. I would not have to stand and would not be afraid of falling and I wold not have to try to raise myself on and off the shower chair.
This is well over a year ago and the HA have said they will reinstall a bath proving I have an up to date OT assessment and the OT assistant I have refuses to do this due to there being no medical need. I am so shocked. The disability resource team he works for the manager became involved in the last few days so since last Wednesday and she says his is right I have not medical need. Yet that OT assistant had told me to get a letter off my GP in March for the HA and he said he had posted it but the HA did not receive it and then just last seek he said my HA wanted an up to date GP letter, so I rang them to ask what info they needed and they said the GP letter (which was scanned through in August) was fine and the system was asking for an OT assessment.
I am sorry this is so long but this last few weeks have been intense and it is obvious the OT assistant appears to have been omit information and having me ringing and waiting days for his reply. Listening to him repeat about the flooding, which he seems fixed on and even though I have told him that even if the shower did not flood it is not accessible for me.
I do not know what to do now. I ma depressed and feel I have been messed around and ignored for so long that I would usually have 'given up by now' and carried on with my strip washes, which is all I have done for a long time now. I wash my hair, when I can, quickly in the kitchen sink. I never feel clean and when I said to the manager of the disability team about the hot water in a bath helping my muscles and ligament's she replied 'You cannot have a bath put in just for your comfort, you have to have medical reasons'. She said my conditions are not on the criteria list and she will send me a copy, at my request and she will have another OP call in 4/6 weeks but it wold be highly unlikely that it will result in a recommendation for a bath, This is the council and the HA have agreed to pay for the bath being installed and yet the council manager is saying an OT will not recommend a bath.
I am so lost for I thought it was what was best for the individual and their needs to self-care and to feel safe and not suffer through using the wrong equipment, Any advice or links to any legislation that covers this type of issue would be greatly appreciated.
- All Categories
- 2.3K Welcome
- 18 How to use your online community
- 30 Help, Guidelines and Get in Touch
- 40.9K Our Community
- 9.1K Living with arthritis
- 81 Hints and Tips
- 232 Work and financial support
- 725 Chat to our Helpline Team
- 4 Want to Get Involved?
- 393 Young people's community
- 9 Parents of Children with Arthritis
- 43 My Triumphs
- 136 Let's Move
- 26 Sports and Hobbies
- 19 Food and Diet
- 261 Coronavirus (COVID-19)
- 18 Community Feedback and ideas
- 356 Chat and News
- 37 Val's Cafe
- 284 Chit chat
- 11 News
- 4 Tails From The Cafe