Managing a LONG flare up!
Hey I’m new here and just looking some advice. I was diagnosed with psoriatic arthritis 3 years ago after I had my first baby. At the time it was just swollen toes and pain in my toes/feet but was easily managed with sulfasalazine. When I got pregnant with my second baby i came off the medication and symptoms were fine but I was warned that it would likely flare again once the baby was born but I planned to go straight back onto the medicine. Had my baby back in February this year and for a couple of weeks things were ok then obviously started to flare but because of covid they wouldn’t let me start back on the meds so things kept getting worse and more joints became effected. At the end of June after 2 falls in as many months and struggling with a toddler and newborn I started back on meds but of course can take 12 weeks to kick in. the arthritis is now back in the feet and toes, right knee, both hips, tight wrist and elbow, middle finger and thumb on left hand and also in my left shoulder. I think with the amount of joints now effected the sulfasalazine wasn’t strong enough so I was given oral steroids to take and then in the middle of November they also started me on methotrexate. Again it can take up to 12 weeks to feel the benefits but I’m trying to be hopefully that they will kick in soon!
my main question though is what is likely to be my new normal? Like should I expect to be able to walk normally ever again without having to lean on something for support? Will I ever sleep without being in pain? Will I always need strong painkillers? I’m currently on the max of tramadol a day but I’m still in so much pain that I honestly dread to think what a day would be like without them! Am I going to be able to play with my kids without the arthritis being an issue?
due to covid my rheumatologist has only seen me once during this flare and that was just before switching me to methotrexate but I didn’t get much sympathy from her so don’t think she realises how bad my arthritis is. I’m only 32 but my 91 year old grandmother moves better than I do!
If u made it this far then I’m sorry for the super long post, it’s just a crappy day and with no end in sight for this flare so I can’t help but get down and I really would like some help or advice.