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Cervical Fusion Complications

It is several years since I posted. I have had quite a tough few years and thought I should return to this supportive community.

My story is that I had a cervical disc replacement in 2016 which lasted 5 weeks before subsiding and my neck becoming unstable. It was fused in early 2017 and all seemed fine until a few months later. Hereafter my real problems started as I moved house and health authority.

I started to get pretty severe neurological symptoms along with appalling pain and other problems but the local neurologist declared nothing was wrong and I was discharged. I appealed to the hospital but they were not prepared to listen. For the past few years I have been trying to see a spinal surgeon but neurology seemed to block it so finally in December saw one privately. The tests I have had have cost me a fortune but as I am so restricted, can't drive any more and may have to move again, which will break my heart, I felt that I had no option.

I went out of the area and indeed I was right, something is badly wrong. A spect ct has revealed a great deal and as of this week I am much closer to some answers. Either an infection in the fusion area, possibly a failure to fuse or both of these. I am also seeing a neurologist who has already identified why I am likely to be getting the neurological symptoms I have which are related to my neck but complicated by other factors. Things are now moving quickly and they have been happy to move me back under the NHS and the neurology and surgery team will make a decision on my care next week.

I am lucky I had the funds to cover the costs of the tests I had and I accept that my case is complex but my local hospital could have done the tests themselves and I could have had better support with day to day living. I first asked for basic advice locally three years ago to try and prevent the attacks I have but after 12 months was advised I needed a diagnosis to get any help. The damming diagnosis of nothing being wrong resulted in no help at all. Hopefully now things should get much better whichever way it goes - the surgeon has said that if the fusion has failed to heal there may be little they can do as it is the second failure but at least I should be able to get some aids to help me a little.

Through all this I have tried to stay positive and motivated. I have always enjoyed sewing and when I can have made lots of items including scrubs and laundry bags for the NHS. I have also built a lovely circle of friends in my new area although like most folks are having we rely on Zoom to communicate. I hope that you are all okay and managing through this challenging time.

Apologies for the long story!

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Comments

  • I also have problems with my neck. Basically the vertebra are collapsing, causing pain, stiffness and dizziness. When I saw the neurologist he said” if I operate you will be in a wheelchair” obviously I was pretty upset. That was a few years ago now and have got used to living with this. I am sorry you have had to go through your experience. Sounds awful. Sometimes I think things are best left alone, if it’s a risk. I hope you can now get some treatment x

  • Dear rayray, you have had an awful journey, poor thing. So glad that at the very least you have now been shown some respect & compassion, and an understanding of what has/is taken place. You are highly motivated to make the best of things now - as is Oxford 6. I wish you both very well.

    I have had problems with my own neck for many years (the cost of pillows!!) & one episode of excruciating, frightening pain. But I am strongly inclined to leave it alone - the rest of my spine & everything else is trouble enough! Besides my RA medication (Baricitinib 4mgs), my best friend for many years has been Naproxen; with care I've never had any tummy trouble, but am obliged to drop it as it is affecting my breathing. Ho Hum life's a balancing act indeed!

    Best wishes for 2021 xx

  • rayrayrayray Posts: 115

    Thanks for your lovely replies. I will wait and see what the hospital team says. Of course if it is an infection I will have to have treatment but hopefully that may just mean antibiotics. I will update you when I have more concrete news.

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