I have never ever posted in a forum before
I am a 34 year old healthcare professional, I have been diagnosed with joint hypermobility syndrome 4 years ago, I also had OA, hip impingement, dysplasia, PVNS and synovial chondromatosis all in my Right hip I had that replaced 3 years ago now and all is well with that (woohoo one thing has gone right lol)
I am currently struggling with flare ups from hypermobility syndrome and having to take time off work I have been off almost 4 weeks now and I am still struggling. I am struggling to get out of bed due to stiffness I always get up and ready it just takes me a long time, doing simple tasks results in pain and stiffness. I had a day on Friday where I just couldn’t get up out of bed and had to have assistance from my partner. Needed help walking short distances. I feel I was given diagnosis and told to get on with it there’s nothing they could do the pain I was experiencing was “just” my hypermobility. I have seen 2 rheumatologist now one nhs one private and both had no suggestions apart from manage your pain I felt as if they weren’t really interested.
I wondered if anyone else has flare ups with joint hypermobility, how long they last and if anyone has any tips to try get back to some sort of normality as I am struggling with the guilt of being off work again always feel letting colleagues down 😢
I also wonder if anyone has came off medication prior to getting pregnant as that was my aim before this flare up so I am anxious about reducing medication now.
thank you x