Should I try for a diagnosis?
Pre-Covid, my then GP thought I might have PSA. Eventually, that was ruled out, and rheumatologist could find nothing wrong apart from 'normal' levels of OA in my hands and feet, which he said 'shouldn't be severe enough' to bother me and my GP lost interest. But I've still got the pain.
Moved last month so now have a new GP surgery. I had a phone consult with one GP for something else and she was asking general questions about my health and then asked if I've ever been tested for Sjogren's syndrome. When I said I hadn't, she said there was no point diagnosing me as there's no cure, just treatment with eyedrops, creams, painkillers etc, which I could do without a diagnosis. I had to see a different GP at the same surgery for an in-person checkup the following week, and she picked up on the first GPs notes about Sjogren's and said if that was what it was, I needed a diagnosis, and that she wanted to put me forward for tests.
I've got mixed feelings - partly, I would like to know what's causing my symptoms so I know if I can do anything to make them better or if I just have to live with them. And it would be helpful to know what is causing my problems, to help plan for the future (I'm 46, so quite a bit of working life left in me, and I'm often struggling - so a diagnosis might help me know if I need to change jobs, or enable me to make changes to my current work that would help me keep going)
But on the other hand, I feel bad about taking up NHS resources if they can't 'fix' me and also, at the moment, it seems daft to go for tests that aren't strictly needed. My last GP told me I just needed to 'get used to getting older'. But I see people in their 60s who are more agile than I am, so I feel 46 is a bit young to be written off as a creaky old crock!
Is there any advantage to getting a diagnosis for Sjogren's (if this is what it is)?
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