Hello! Need to vent a little (plus advice on second opinion welcome!)
I'm new here (but not new to Psoriatic Arthritis [PsA]).
When I turned 30 (April 2004) I suddenly got PsA in my hands and feet so that by the winter of that year, I could barely walk (shuffle) and I couldn't lift a pint/kettle/turn on taps + PAIN. I got a referral & diagnosis then. Meds... time... and a year or two later I was pretty symptom free and taking nothing. I knew it could/probably would come back. I felt very fortunate. Still have/had psoriasis but who cares about skin/nails when you can do buttons up without thinking about it, eh?
I've just turned 47. I got Covid (untested) in March 2020. It seemed to trigger something so by late summer my hands and feet were having a severe flare up. My hands in particular swell up - it's in a different place to years ago (now my knuckles rather than thumb joint) but such that I can't make a fist some days - so driving / changing my bedding / day to day stuff became impossible.
Thankfully I'm still able to work from home - new ergonomic mouse etc. plus I can talk at Word.
I got a referral and in December they put me on Naproxen (with Lansoprazole) while I was having tests. The consultant I saw couldn't see any particular swelling and told me I didn't have psoriasis (till I showed him).
So there have been tests and in the meantime, my GP has given me repeat prescriptions.
Now why I'm writing this... I had a call from the consultant rheumatologist today [not the one I met but another one].
The call did start with him asking how things were. Naproxen has largely taken away the pain and swelling (just some in my right hand today and only minor foot pain). I related that when I'd stopped taking it for a week before the ultrasound it had come back to much swelling/pain again and what that meant - not being able to drive, remove a pillow case, do up a belt etc.
Then (and I'm paraphrasing) he told me...
- My blood test(s) were fine (so I'm fine)
- My X Rays were fine (so I'm fine)
- My Ultrasound showed some stuff - but not much (so I'm fine)
- Reduce the Naproxen to severe days and take paracetamol
So what do I do now? I asked him that... do I just give up normal daily life? He said he couldn't diagnose PsA from my test but I reminded him - I had told them of my history and I already have a diagnosis. I'm not pushing for any particular treatment - but should I get some?
He made me feel like he didn't believe me - like, who would make this up?
Any advice on second opinions (or just any other advice)?
Thanks for reading if you got this far.