Hi can anyone help?

Hi I have been in chronic pain since 2019 that has now got to the point that I am now off sick from work and no medication is working . I was diagnosed with ME and fibromyalgia in 2020 but am in constant muscle pain with chest pain, breathing problems, RLS pain in my head ( pain when touching it ) and migraines . I was just wondering if this really I’d fibromyalgia as my doctor is no help and I’m only 41 and feel useless ....


  • Anna
    Anna Moderator Posts: 232

    Hello @Honeybunny and welcome to the online community,

    You've been diagnosed with ME and fibromyalgia and have been in constant pain since 2019. You’ve been experiencing a variety of different symptoms and you wonder if this is really fibromyalgia.

    The Versus Arthritis website has a useful page on fibromyalgia that you might like to read. It explains that fibromyalgia is caused by nerve pain and can appear in any part of the body, so it could be that the pain you mention is linked to fibromyalgia, but it’s difficult to diagnose. However, the pain can be dealt with, and I suggest that you ask your GP for a referral to a pain clinic. A variety of medical professionals, including occupational therapists, physical therapists, psychologists and specialist pain consultants will consider the best way to help you. Have a look at the link below for more information:

    Many of our members experience pain in their daily lives and I’m sure they will be able to advise and support you so you don’t have to go through this on your own.

    Best wishes,

    Anna ( Mod)

  • Jona
    Jona Member Posts: 145

    Hi honey bunny,

    Omg don’t lever feel like that you are definitely not useless your in pain I honestly understand how you feel phone your gp ask for a second opinion maybe with a gp that has a special interest in arthritis/fibromyalgia the receptionist will advise and ask for a double appt so you and he/she have time to discuss properly and tell them how it’s making you feel your not alone with this and the lovely people here will advise and help all they can keep posting and talking

    take care

    love Jona 😊💪

  • compulsive_rambler
    compulsive_rambler Member Posts: 7
    edited 5. May 2021, 21:24

    If there's one thing all the post-covid imaging shows, like the most recent BMJ Open Coverscan study, it's that ME/post-viral fatigue + chest pain + breathlessness screams "get an MRI to check for post-viral myocarditis".

    It has taken my young friend who caught covid when I did (probably from me, in fact) a year to have a doctor finally suspect heart involvement, probably because of the research piling up from around the world proving that myocarditis is incredibly common in post-viral syndrome patients; at least, it is after covid. It's 1 in 3 or 1 in 5 of "post-covid syndrome" patients, depending on how many months after infection they get scanned. It's just rarely *diagnosed* and treated correctly because post-infection cardiac MRIs are rarely offered to non-athletes even if patients have every last symptom.

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