I live in Dorset, and have just been diagnosed with RA "plus another, as yet unconfirmed auto-immune condition, possibly Lupus"; I can't have the repeat bloods done to confirm this second diagnosis for another 6 months ... so in limbo there.
I went to see my GP a few weeks ago basically wanting confirmation of my own thoughts, that I had Fibromyalgia. GP did some of the routine pressure-point tests, and was quite sure I was right, but told me I had to see a rheumatologist for the definitive diagnosis.
I had that appointment last Wednesday. The rheumatologist was lovely, but ruled-OUT Fibro, and told me I've got RA and probably Lupus ...
I'm still in shock. I know little about RA, nothing about Lupus (but I know this isn't a Lupus support group), and refuse to Google coz I know how much scary rubbish is on the Net. A friend pointed me in the direction of VA ... so here I am.
I'm scared about my new diagnosis. I've seen a little about a couple of treatments, but know I won't be able to take one of those (hydroxycloroquine) because I've got a strong family history (mum, aunt, grandfather, uncle) of both Glaucoma and Macular Degeneration ... and cannot risk a bleed or retinal damage to add to the mix there!