Hi, has anyone been diagnosed with Cogan’s Syndrome?

Hi, I’m new today and have recently been diagnosed with Cogan’s Syndrome. I’ve had no support from rheumatology and struggling to find much info or anyone with the same condition due to it being rare. Would love to hear from anyone else! Thank you 😊

Comments

  • Chris_R
    Chris_R Moderator Posts: 490
    edited 11. Jun 2021, 13:58

    Hi @ninscogan1

    Welcome to the online community,great you have found us and posting aswell.

    You ask about Cogans Syndrome and if any one has the same condition due to it being very rare.

    I have looked on our web site and cannot find anything about Cogan,s Syndrome.Maybe some one on the forums have so keep chatting and please tell us how you get on.Will keep on researching for you

    All the best Christine

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