Cogan’s Syndrome

ninscogan1

Hi, I’m new so navigating my way round! I’ve recently been diagnosed with Cogan’s Syndrome but struggling to find anyone else with the same condition and/or much information about it with it being rare. Would love to hear from anyone else with similar! Thank you 😊

Shaphron

Hi @ninscogan1 !

I've had a quick look, and I've found some information on Cogan's Syndrome. Have a look at the links below, which might help. Unfortunately I don't think it's an arthritis-related condition, so this may not be the best place to look for other people who have it....

https://www.vasculitis.org.uk/about-vasculitis/cogans-syndrome

https://rarediseases.info.nih.gov/diseases/1421/cogans-syndrome

I've looked around and can't see any UK based groups, sadly. Don't think this means you can't stay here and chat or talk about your condition - we're very happy for anyone to chat if it helps!

😊