Help with palindromic rheumatism
I am a 27 year old woman and I have recently been diagnosed with palindromic rheumatism after almost a year of appointments and tests. My rheumatologist has advised that I do not start taking any drugs to assist with the arthritis itself yet, but has not offered any assistance with coping with the condition day to day.
When I have an attack, I cannot go about my daily life and the fatigue makes it almost impossible to go to work. I am missing exercising and the fact that I cannot predict when I will have an attack makes life difficult to plan. I am struggling to get help and advice with any of this.
I'd be really grateful for any advice on managing pain and who to talk to (e.g. GP?) to get help.
Thank you 😊