BIOLOGICS FOR REACTIVE ARTHRITIS
I have just turned 34. I've spent the past 5 months attempting to get my head around my diagnosis of seronegative arthritis. My Rheumatologist only decided to test to HLAB27 gene 2 months ago (positive for the gene) and so my diagnosis of reactive arthritis only happened 2 months ago.
I've spent a lot of time in hospital, have had both of my knees aspirated almost 8 times in total, have been on PREDNISOLONE 20mg steroids for 4 months, METHOTREXATE for 3 months and SULFASALAZINE for almost 5 weeks.
None of the above really do much to help the ever spreading arthritis. The one thing that did help was the steroid injection in my right knee but the one in the left lasted only about 10 days!
It has spread over the course of the last 5 months and was originally just in my knee and 1 finger, but is now in both knees, both feet (all over!), 2 toes, 1 finger and 1 thumb. Slightly worryingly I now have lower-mid back pain (left hand side only) and jaw and tooth pain, as well as headaches (I've never had headaches in my life really!)
I read a case study recently which said that often dmards generally don't work too well for hlab27 positive reactive arthritis sufferers, but there is a small study to suggest that TNF blocking biologics are much better. Sadly I have to wait 2 more months as they won't start me on them till the sulfasalazine has been in my system for 3 months...the sulfasalazine seems to be helping a bit with my knees but my other symptoms, including AWFUL FATIGUE, have just progressed and aren't affected by any of the meds!
I am now tapering very slowly off my steroids as they're doing nothing and just make me fat and moon facey and the depression is unbearable! So
My question is - has anyone else had biologics for Reactive Arthritis (NOT rheumatoid) and have you had any positive reactions???
Any help would be amazing!
X hannah x
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